This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to charcot-marie-tooth disorder (also Charcot-Marie-Tooth Disease (Variant); Charcot-Marie-Tooth-Roussy-Levy Disease; Hereditary Areflexic Dystasia; Hereditary Motor and Sensory Neuropathy; Hereditary motor and sensory neu-ropathy; Hereditary Motor Sensory Neuropathy), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on charcot-marie-tooth disorder. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.

This volume discusses developments in research and clinical aspects of Charcot-Marie-Tooth disease (CMT), the most common peripheral neuropathy in humans. The genetic causes of most of the demyelinating forms of CMT have now been identified, and the molecular biology of peripheral nervous structure and the function of many of the molecules involved in the pathogenesis of CMT are becoming clearer. With the development of viral vectors to introduce genes into the peripheral nervous system, as well as the trophic factors to promote nerve regeneration and remyelination, gene therapy for CMT is becoming a realistic possibility. These issues, among others, are explored in this volume, and areas of future research are outlined.

P IConsumer Sourcebook /I provides a comprehensive digest of accessible resources and advisory information for the American consumer. This new edition identifies and describes some 23,000 programs and services available to the general public at little or no cost. These services are provided by federal, state, county, and local governments and their agencies as well as by organizations and associations. PConsumer affairs and customer services departments for corporations are also listed as well as related publications, multimedia products, general tips and recommendations for consumers. The master index is arranged alphabetically by name and by subject term.

This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to behcet's disease (also Adamantiades-Behcet's Syndrome; Behcet's Disease; Franceschetti-Valerio syndrome; Halushi-Behcet's Syndrome; Mucocutaneous ocular syndrome; Oculo-Bucco-Genital Syndrome), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on behcet's disease. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.

This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to scleroderma, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on scleroderma. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Scleroderma: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Scleroderma; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Scleroderma; Chapter 5. Patents on Scleroderma; Chapter 6. Books on Scleroderma; Chapter 7. Multimedia on Scleroderma; Chapter 8. Periodicals and News on Scleroderma; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Scleroderma; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; SCLERODERMA GLOSSARY; INDEX. Related topics include: Familial Progressive Systemic Sclerosis, Morphea, Progressive systemic sclerosis, Systemic Sclerosis.