The Narrative Approach to Informed Consent

The Narrative Approach to Informed Consent
Title The Narrative Approach to Informed Consent PDF eBook
Author Fiona Mayne
Publisher Routledge
Pages 182
Release 2021-11-15
Genre Education
ISBN 1000456188

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The Narrative Approach to Informed Consent: Empowering Young Children’s Rights and Meaningful Participation is a practical guide for researchers who want to engage young children in rights-based, participatory research. This book presents the Narrative Approach, an original and innovative method to help children understand their participation in research. This approach moves away from traditional paper-based consent to tailor the informed consent process to the specific needs of young children. Through the Informing Story, which employs a combination of interaction, information and narrative, this method enables children to comprehend concepts through storytelling. Researchers are stepped through the development of an Informing Story so that they can deliver accurate information to young children about what their participation in research is likely to involve. To further inform practice, the book documents the implementation of the Narrative Approach in four case studies demonstrating the variety of settings in which the method can be applied. The Narrative Approach to Informed Consent addresses the rights of young children to be properly researched, expands opportunities for their active and engaged research participation, and creates a unique conceptual ethical space within which meaningful informed consent can occur. This book will be an invaluable tool for novice and experienced researchers and is applicable to a wide range of education and non-education contexts.

Informed Consent and Health Literacy

Informed Consent and Health Literacy
Title Informed Consent and Health Literacy PDF eBook
Author Institute of Medicine
Publisher National Academies Press
Pages 228
Release 2015-03-04
Genre Medical
ISBN 0309317304

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Informed consent - the process of communication between a patient or research subject and a physician or researcher that results in the explicit agreement to undergo a specific medical intervention - is an ethical concept based on the principle that all patients and research subjects should understand and agree to the potential consequences of the clinical care they receive. Regulations that govern the attainment of informed consent for treatment and research are crucial to ensuring that medical care and research are conducted in an ethical manner and with the utmost respect for individual preferences and dignity. These regulations, however, often require - or are perceived to require - that informed consent documents and related materials contain language that is beyond the comprehension level of most patients and study participants. To explore what actions can be taken to help close the gap between what is required in the informed consent process and communicating it in a health-literate and meaningful manner to individuals, the Institute of Medicine's Roundtable on Health Literacy convened a one-day public workshop featuring presentations and discussions that examine the implications of health literacy for informed consent for both research involving human subjects and treatment of patients. Topics covered in this workshop included an overview of the ethical imperative to gain informed consent from patients and research participants, a review of the current state and best practices for informed consent in research and treatment, the connection between poor informed consent processes and minority underrepresentation in research, new approaches to informed consent that reflect principles of health literacy, and the future of informed consent in the treatment and research settings. Informed Consent and Health Literacy is the summary of the presentations and discussion of the workshop.

Stories and Their Limits

Stories and Their Limits
Title Stories and Their Limits PDF eBook
Author Hilde Lindemann Nelson
Publisher Routledge
Pages 308
Release 2014-01-21
Genre Social Science
ISBN 1317828046

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Narratives have always played a prominent role in both bioethics and medicine; the fields have attracted much storytelling, ranging from great literature to humbler stories of sickness and personal histories. And all bioethicists work with cases--from court cases that shape policy matters to case studies that chronicle sickness. But how useful are these various narratives for sorting out moral matters? What kind of ethical work can stories do--and what are the limits to this work? The new essays in Stories and Their Limits offer insightful reflections on the relationship between narratives and ethics.

Stories and Their Limits

Stories and Their Limits
Title Stories and Their Limits PDF eBook
Author Hilde Lindemann Nelson
Publisher Routledge
Pages 305
Release 2014-01-21
Genre Social Science
ISBN 1317828054

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Narratives have always played a prominent role in both bioethics and medicine; the fields have attracted much storytelling, ranging from great literature to humbler stories of sickness and personal histories. And all bioethicists work with cases--from court cases that shape policy matters to case studies that chronicle sickness. But how useful are these various narratives for sorting out moral matters? What kind of ethical work can stories do--and what are the limits to this work? The new essays in Stories and Their Limits offer insightful reflections on the relationship between narratives and ethics.

Rehabilitation Ethics for Interprofessional Practice

Rehabilitation Ethics for Interprofessional Practice
Title Rehabilitation Ethics for Interprofessional Practice PDF eBook
Author Laura L. Swisher
Publisher Jones & Bartlett Learning
Pages 265
Release 2019-02-26
Genre Medical
ISBN 1284195627

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Rehabilitation professionals need to be grounded in moral principles in order to meet the needs of patients and effectively collaborate in interprofessional healthcare teams. Rehabilitation Ethics for Interprofessional Practice introduces a common language and theory for interdisciplinary ethics education and practice while establishing a moral foundation and guiding readers in how to put ethical principles into action. The text begins by describing the moral commons, a framework for ethical deliberation characterized by mutual respect for personal and professional identity, common language, inclusion of relevant stakeholders, and the dialogic process. The authors then describe the Dialogic Engagement Model (DEM), gives professionals a structure and space for learning and understanding within their teams as they strive to provide ethical patient care. Rehabilitation Ethics for Interprofessional Practice is forward-looking, grounded in both theory and practice. A resource for faculty

Kaplan and Sadock's Comprehensive Textbook of Psychiatry

Kaplan and Sadock's Comprehensive Textbook of Psychiatry
Title Kaplan and Sadock's Comprehensive Textbook of Psychiatry PDF eBook
Author Benjamin J. Sadock
Publisher Lippincott Williams & Wilkins
Pages 12870
Release 2017-05-11
Genre Medical
ISBN 1496389158

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50th Anniversary Edition The cornerstone text in the field for 50 years, Kaplan & Sadock's Comprehensive Textbook of Psychiatry has consistently kept pace with the rapid growth of research and knowledge in neural science, as well as biological and psychological science. This two-volume Tenth Edition shares the expertise of over 600 renowned contributors who cover the full range of psychiatry and mental health, including neural science, genetics, neuropsychiatry, psychopharmacology, and other key areas. It remains the gold standard of reference for all those who work with the mentally ill, including psychiatrists and other physicians, psychologists, psychiatric social workers, psychiatric nurses, and other mental health professionals.

Capturing Children's Meanings in Early Childhood Research and Practice

Capturing Children's Meanings in Early Childhood Research and Practice
Title Capturing Children's Meanings in Early Childhood Research and Practice PDF eBook
Author Ann Marie Halpenny
Publisher Routledge
Pages 256
Release 2020-11-26
Genre Education
ISBN 1351163957

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Capturing Children’s Meanings in Early Childhood Research and Practice draws together contemporary research and established theories to produce a unique take on the meanings children express through a range of creative tools. Drawing on Reggio Emilia and the Mosaic approach, this book provides readers with a range of strategies for accessing, recording and interpreting young children’s perceptions of and responses to their experiences. Providing a synthesis of the multiple imaginative ways we can capture young children’s meanings through observations, art, photo elicitation, mindfulness, music and other creative methods, Halpenny covers topics such as: Negotiating challenges presented by researching with children Frameworks for seeing and hearing children’s intentions Accurately documenting and interpreting research findings Promoting children’s meanings and their performance of them Moving forward with new understandings This book is an indispensable resource for students of early childhood education, especially for courses focusing on the lived experiences of children from early to middle childhood. It is also a useful reference for those working with young children in educational and caregiving settings, and for those advocating for young children.