The CF Warrior Project
Title | The CF Warrior Project PDF eBook |
Author | Andy C. Lipman |
Publisher | Booklogix |
Pages | 216 |
Release | 2019-05-15 |
Genre | Health & Fitness |
ISBN | 9781610059558 |
"Andy's book will provide hope for those who so desperately need it. These stories of strength and determination are inspiration to keep fighting in our own lives." --Celine Dion "These are tales of warriors who have beaten the odds by making their dreams come true. These are stories that will give you hope. And by buying this book, you will bring us closer to a cure. That is my dream." --Lewis Black "After spending time with cystic fibrosis warriors throughout the country, I've quickly realized they are the toughest and most resilient people I have ever met. The outlook CF warriors have on life is one that everyone should strive to have." --Colton Underwood "These are the stories of CF warriors who refused to succumb to a distressful prognosis, and instead thrived through the power of belief." --Megan Fox
Breath from Salt
Title | Breath from Salt PDF eBook |
Author | Bijal P. Trivedi |
Publisher | BenBella Books |
Pages | 744 |
Release | 2020-09-08 |
Genre | Medical |
ISBN | 1948836629 |
Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.
Alive at 25
Title | Alive at 25 PDF eBook |
Author | Andy Lipman |
Publisher | Taylor Trade Publishing |
Pages | 0 |
Release | 2001 |
Genre | Cystic fibrosis |
ISBN | 9781563526817 |
Afflicted with cystic fibrosis since birth, doctors told Andy Lipman's parents he'd be lucky to reach age 25. Over the years, however, Andy has found strength and determination in his athletic pursuits, has surprised his doctors, and defied the medical odds. On his 25th birthday, he picked up a pen and began to write his story. Now 28, healthy, happy, and very much alive, Andy shares his bittersweet story with humor and wit.
Salt in My Soul
Title | Salt in My Soul PDF eBook |
Author | Mallory Smith |
Publisher | Random House |
Pages | 336 |
Release | 2019-03-12 |
Genre | Biography & Autobiography |
ISBN | 1984855433 |
The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
The Crucifixion of the Warrior God
Title | The Crucifixion of the Warrior God PDF eBook |
Author | Gregory A. Boyd |
Publisher | Fortress Press |
Pages | 1487 |
Release | 2017-04-17 |
Genre | Religion |
ISBN | 1506420761 |
A dramatic tension confronts every Christian believer and interpreter of Scripture: on the one hand, we encounter images of God commanding and engaging in horrendous violence: one the other hand, we encounter the non-violent teachings and example of Jesus, whose loving, self-sacrificial death and resurrection is held up as the supreme revelation of God’s character in the New Testament. How do we reconcile the tension between these seemingly disparate depictions? Are they even capable of reconciliation? Throughout Christian history, many different answers have been proposed, ranging from the long-rejected explanation that these contrasting depictions are of two entirely different ‘gods’ to recent social and cultural theories of metaphor and narrative representation. The Crucifixion of the Warrior God takes up this dramatic tension and the range of proposed answers in an epic constructive investigation. Over two volumes, renowned theologian and biblical scholar Gregory A. Boyd argues that we must take seriously the full range of Scripture as inspired, including its violent depictions of God. At the same time, we must take just as seriously the absolute centrality of the crucified and risen Christ as the supreme revelation of God. Developing a theological interpretation of Scripture that he labels a “cruciform hermeneutic,” Boyd demonstrates how Scripture’s violent images of God are completely reframed and their violence subverted when they are interpreted through the lens of the cross and resurrection. Indeed, when read through this lens, Boyd argues that these violent depictions can be shown to bear witness to the same self-sacrificial character of God that was supremely revealed on the cross.
Facts about Cystic Fibrosis
Title | Facts about Cystic Fibrosis PDF eBook |
Author | |
Publisher | |
Pages | 6 |
Release | 1995 |
Genre | Cystic fibrosis |
ISBN |
8 Weeks to SEALFIT
Title | 8 Weeks to SEALFIT PDF eBook |
Author | Mark Divine |
Publisher | Macmillan |
Pages | 273 |
Release | 2014-04 |
Genre | Biography & Autobiography |
ISBN | 125004054X |
A workout book with techniques used by Navy SEALs combined with Cross Fit by a well known Navy SEAL fitness instructor