The history of contemporary genetic counseling, including its medical, personal, and ethical dimensions. Winner of the CHOICE Outstanding Academic Title of the Choice ACRL For sixty years genetic counselors have served as the messengers of important information about the risks, realities, and perceptions of genetic conditions. More than 2,500 certified genetic counselors in the United States work in clinics, community and teaching hospitals, public health departments, private biotech companies, and universities. Telling Genes considers the purpose of genetic counseling for twenty-first century families and society and places the field into its historical context. Genetic counselors educate physicians, scientific researchers, and prospective parents about the role of genetics in inherited disease. They are responsible for reliably translating test results and technical data for a diverse clientele, using scientific acumen and human empathy to help people make informed decisions about genomic medicine. Alexandra Minna Stern traces the development of genetic counseling from the eugenics movement of the early twentieth century to the current era of human genomics. Drawing from archival records, patient files, and oral histories, Stern presents the fascinating story of the growth of genetic counseling practices, principles, and professionals.

What is the alt-right? What do they believe, and how did they take center stage in the American social and political consciousness? Historian Alexandra Minna Stern excavates the alt-right memes that have erupted online and digs to the root of the far right’s motivations: their deep-seated fear of an oncoming “white genocide” that can only be remedied through aggressive action to reclaim white power. The alt-right has expanded significantly throughout America’s cultural, political, and digital landscapes: racist, sexist, and homophobic beliefs that were previously unspeakable have become commonplace, normalized, and accepted—endangering American democracy and society as a whole. When asked to address the Proud Boys and growing far right violence, President Trump directed the group to “stand back and stand by;” and just two weeks before President Joe Biden’s inauguration, a white supremacist mob breached the US Capitol—earning praise from the Proud Boys leader amongst threats of future violence. In order to dismantle the destructive movement that has invaded our public consciousness and threatens American democracy, we must first understand the core beliefs that drive the alt-right. Through careful analysis, Stern brings awareness to the underlying concepts that guide the alt-right and its overlapping forms of racism, xenophobia, and transphobia. She explains the key ideas of “red-pilling,” strategic trolling, gender essentialism, and the alt-right’s ultimate fantasy: a future where minorities have been “cleansed” from the body politic and a white ethnostate is established in the United States. By unearthing the hidden mechanisms that power white nationalism, Stern reveals just how pervasive the far right truly is.

Introduction : scrutinized fetuses -- Born imperfect : birth defects before prenatal diagnosis -- Karyotypes -- Human malformations -- From prenatal diagnosis to prenatal screening -- Sex chromosome aneuploidies -- PND and new genomics approaches -- Conclusion : PND's slippery slopes, imagined and real

"The author argues that postwar clinical professionals resisted adopting more positive, accepting, and sociopolitical perspectives on people with disabilities, as were espoused by self-advocates and family advocates, primarily owing to concerns about professional role, identity, and prestige"--

This informative new book presents an accessible account of the development of medical genetics over the past 70 years, one of the most important areas of 20th, and now 21st, century science and medicine. Based largely on the author’s personal involvement and career as a leader in the field over the last half century, both in the UK and internationally, it draws on his interest and involvement in documenting the history of medical genetics. Underpinning the content is a unique series of 100 recorded interviews undertaken by the author with key older workers in the field, the majority British, providing invaluable information going back to the very beginnings of human and medical genetics. Focusing principally on medically relevant areas of genetics rather than the underlying basic science and technological aspects, the book offers a fascinating insight for those working and training in the field of clinical or laboratory aspects of medical genetics, genomics and allied areas; it will also be of interest to historians of science and medicine and to workers in the social sciences who are increasingly attracted by the social and ethical challenges posed by modern medical genetics and genomics.

A Companion to the History of American Science offers a collection of essays that give an authoritative overview of the most recent scholarship on the history of American science. Covers topics including astronomy, agriculture, chemistry, eugenics, Big Science, military technology, and more Features contributions by the most accomplished scholars in the field of science history Covers pivotal events in U.S. history that shaped the development of science and science policy such as WWII, the Cold War, and the Women’s Rights movement

Introduction. Disability and belonging in adoption history -- Expecting normality: 1918-1955. Exclusionary practices in the age of eugenics and child welfare ; Risk equivalence and the postwar family -- Working toward inclusion: 1955-1980. Love, acceptance, and the narrative of overcoming ; From overcoming to programmatic solutions -- Continued obstacles: 1980-1997. Institutional and structural barriers to the adoption of children with disabilities ; The limits of inclusion -- Epilogue. A usable past: thinking about contemporary practice in light of history.