Taking stock of the overall confused picture that research and innovation (R&I) literature and practices offer with regard to citizen and stakeholder participation, this book provides a methodical conceptual and an empirical analysis to determine the connection between ethics and participation. Strong theoretical pillars in the fields of ethics, politics and responsible research and innovation (RRI) form the backbone of this critical approach to participation, which considers new approaches to democratic participation. Taking into account a number of participatory processes, Responsive Ethics and Participation establishes a new methodology to differentiate, classify and understand the added value of the participation of citizens and stakeholders in R&I. Participation could be considered the epitome of innovation ethics. However, its multidimensionality, its ethical and theoretical grounds and the nature of the involvement and related outcomes must be clarified at the outset, in order to reach active forms of participation. Ethical participation is required for reliable developments in science and technology, which is what this book ultimately demonstrates.

Taking stock of the overall confused picture that research and innovation (R&I) literature and practices offer with regard to citizen and stakeholder participation, this book provides a methodical conceptual and an empirical analysis to determine the connection between ethics and participation. Strong theoretical pillars in the fields of ethics, politics and responsible research and innovation (RRI) form the backbone of this critical approach to participation, which considers new approaches to democratic participation. Taking into account a number of participatory processes, Responsive Ethics and Participation establishes a new methodology to differentiate, classify and understand the added value of the participation of citizens and stakeholders in R&I. Participation could be considered the epitome of innovation ethics. However, its multidimensionality, its ethical and theoretical grounds and the nature of the involvement and related outcomes must be clarified at the outset, in order to reach active forms of participation. Ethical participation is required for reliable developments in science and technology, which is what this book ultimately demonstrates.

Ethics in Social Science Research: Becoming Culturally Responsive provides a thorough grounding in research ethics, along with examples of real-world ethical dilemmas in working with vulnerable populations. Author Maria K. E. Lahman aims to help qualitative research students design ethically and culturally responsive research with communities that may be very different from their own. Throughout, compelling first person accounts of ethics in human research—both historical and contemporary—are highlighted and each chapter includes vignettes written by the author and her collaborators about real qualitative research projects.

Brings together international scholars across the social and behavioural sciences and education to address those ethical issues that arise in the theory and practice of research within the technologically advancing and culturally complex world in which we live.

Sharing research data on public health issues can promote expanded scientific inquiry and has the potential to advance improvements in public health. Although sharing data is the norm in some research fields, sharing of data in public health is not as firmly established. In March 2015, the National Research Council organized an international conference in Stellenbosch, South Africa, to explore the benefits of and barriers to sharing research data within the African context. The workshop brought together public health researchers and epidemiologists primarily from the African continent, along with selected international experts, to talk about the benefits and challenges of sharing data to improve public health, and to discuss potential actions to guide future work related to public health research data sharing. Sharing Research Data to Improve Public Health in Africa summarizes the presentations and discussions from this workshop.

This book poses questions on how to work ethically in research on science education. Applying research ethics reflectively and responsibly is fundamental for conducting research with people. It seeks to renew the conversation on how and why to engage with ethics in science education research and to adjust and refine research practices. It highlights both the need for methodological reflections in science education research and the particular ethical research challenges of science education. Science education research involves the study of people – often young and vulnerable people – and their practices. Researchers working within humanities and social science research commonly follow guidelines and codes of conducts set by country-specific ethics committees. Such guidelines function as minimal requirement for ethical reflection. This book seeks to engage the community of science education researchers in a conversation on ethics in science education moving beyond the mere compliance with governmental regulations toward a collective reflection. It asks the question of whether the existing guidelines provided for researchers are keeping up with contemporary realities of the visual presence of individuals in digital spaces. It also asks questions on how participatory research methodologies alters the relations between researchers and practitioners. This book is organized into two parts: Part one is entitled Challenging existing norms and practices. It asks questions such as: What are the conditions of knowledge that shape ethical decision making? Where is this kind of knowledge coming from? How is this knowledge structured, and where are the limitations? How can we justify our beliefs concerning our ethical research actions? Part two Epistemological considerations for ethical science education research centres norms and practices of conducting science education research in regard to methods, validity and scope.

"In the new 2016 version of the ethical guidelines, CIOMS provides answers to a number of pressing issues in research ethics. The Council does so by stressing the need for research having scientific and social value, by providing special guidelines for health-related research in low-resource settings, by detailing the provisions for involving vulnerable groups in research and for describing under what conditions biological samples and health-related data can be used for research."--Page 4 de la couverture.