Reframing Disability and Quality of Life
Title | Reframing Disability and Quality of Life PDF eBook |
Author | Narelle Warren |
Publisher | Springer Science & Business Media |
Pages | 253 |
Release | 2013-03-12 |
Genre | Social Science |
ISBN | 9400730187 |
This volume brings together two parallel fields of interest. One is the understanding among psychologists and other social scientists of the limits to psychometric measurement, and the challenges in generating information about quality of life and wellbeing that enable comparison across time and place, at both individual and population levels. The second is the interest among anthropologists and others in the lived experience of chronic illness and disability, including the unpredictable fluctuations in perceived health and capability. Chronic conditions and physical impairments are assumed to impact negatively on people’s quality of life, affecting them psychologically, socially and economically. While some of these conditions have declined in prevalence, as a result of prenatal diagnosis, early successful interventions, and changes in medical technology and surgery, many of these conditions are on the increase as a consequence of improved life-saving medication and technology, and greater longevity. ‘Quality of life’ is often used as an indicator for successful and high quality health services, and good access to medical attention and surgery – for hip replacements or laser surgery to improve vision, for instance. But it is also used as an argument against interventions, when such interventions are seen to prolong life for its own sake. Yet we also know that people vary their idea of quality as a result of the context of fluctuations in their own health status, the presence or absence of pain or discomfort, and as a result of variations in social and economic contextual factors. In exploring these questions, this volume contributes to emerging debates related to individual health outcomes, but also to the social and other individual determinants that influence everyday life. Understanding these broader contextual factors will contribute to our knowledge of the kinds of services, support systems, and infrastructure that provide people with good ‘quality of life’ and a sense of wellbeing, regardless of their physical health, capability and functioning. The volume includes scholars from all continents who have been encouraged to think critically, and to engage with the descriptive, methodological, social, policy and clinical implications of their work.
Reframing Disability?
Title | Reframing Disability? PDF eBook |
Author | Daniel Jackson |
Publisher | Routledge |
Pages | 283 |
Release | 2014-12-05 |
Genre | Social Science |
ISBN | 1317632702 |
The London 2012 Paralympic Games - the biggest, most accessible and best-attended games in the Paralympics' 64-year history - came with an explicit aim to "transform the perception of disabled people in society," and use sport to contribute to "a better world for all people with a disability." This social agenda offered the potential to re-frame disability; to symbolically challenge "ableist" ideology and to offer a reinvention of the (dis)abled body and a redefinition of the possible. This edited collection investigates what has and is happening in relation to these ambitions. The book is structured around three key questions: 1. What were the predominant mediated narratives surrounding the Paralympics, and what are the associated meanings attached to them? 2. How were the Paralympics experienced by media audiences (both disabled and non-disabled)? 3. To what extent did the 2012 Paralympics inspire social change? Each section of this book is interspersed with authentic "voices" from outside academia: broadcasters, athletes and disabled schoolchildren.
The Development, Conceptualisation and Implementation of Quality in Disability Support Services
Title | The Development, Conceptualisation and Implementation of Quality in Disability Support Services PDF eBook |
Author | Jan Šiška |
Publisher | Charles University in Prague, Karolinum Press |
Pages | 346 |
Release | 2021-08-01 |
Genre | Social Science |
ISBN | 8024649535 |
Social services for people with disabilities have undergone substantial changes over time, in particular in the past two decades. Whilst lack of affordable and appropriate housing is a barrier to community living for many people with disabilities, it is only one part of the jigsaw. This book traces some of these changes, in particular related to living situation and support available, in a range of different countries and considers the factors that have influenced these changes. This book considers other aspects of what is needed to bring about real change in the lives of all people with disabilities.
Remaking the Human
Title | Remaking the Human PDF eBook |
Author | Alvaro Jarrín |
Publisher | Berghahn Books |
Pages | 289 |
Release | 2021-04-01 |
Genre | Social Science |
ISBN | 1800730322 |
The technological capacity to transform biology - repairing, reshaping and replacing body parts, chemicals and functions – is now part of our lives. Humanity is confronted with a variety of affordable and non-invasive 'enhancement technologies': anti-ageing medicine, aesthetic surgery, cognitive and sexual enhancers, lifestyle drugs, prosthetics and hormone supplements. This collection focuses on why people find these practices so seductive and provides ethnographic insights into people’s motives and aspirations as they embrace or reject enhancement technologies, which are closely entangled with negotiations over gender, class, age, nationality and ethnicity.
Disability, Normalcy, and the Everyday
Title | Disability, Normalcy, and the Everyday PDF eBook |
Author | Gareth M. Thomas |
Publisher | Routledge |
Pages | 333 |
Release | 2018-03-09 |
Genre | Social Science |
ISBN | 1315446421 |
Many critical analyses of disability address important ‘macro’ concerns, but are often far removed from an interactional and micro-level focus. Written by leading scholars in the field, and containing a range of theoretical and empirical contributions from around the world, this book focuses on the taken-for-granted, mundane human activities at the heart of how social life is reproduced, and how this impacts on the lives of those with a disability, family members, and other allies. It departs from earlier accounts by making sense of how disability is lived, mobilised, and enacted in everyday lives. Although broad in focus and navigating diverse social contexts, chapters are united by a concern with foregrounding micro, mundane moments for making sense of powerful discourses, practices, affects, relations, and world-making for disabled people and their allies. Using different examples – including learning disabilities, cerebral palsy, dementia, polio, and Parkinson’s disease – contributions move beyond a simplified narrow classification of disability which creates rigid categories of existence and denies bodily variation. Disability, Normalcy, and the Everyday should be considered essential reading for disability studies students and academics, as well as professionals involved in health and social care. With contributions located within new and familiar debates around embodiment, stigma, gender, identity, inequality, care, ethics, choice, materiality, youth, and representation, this book will be of interest to academics from different disciplinary backgrounds including sociology, anthropology, humanities, public health, allied health professions, science and technology studies, social work, and social policy.
Integrating the Participants’ Perspective in the Study of Language and Communication Disorders
Title | Integrating the Participants’ Perspective in the Study of Language and Communication Disorders PDF eBook |
Author | Charlotte Marie Bisgaard Klemmensen |
Publisher | Springer |
Pages | 162 |
Release | 2018-04-10 |
Genre | Language Arts & Disciplines |
ISBN | 3319786342 |
This book presents a new analytical approach that will advance the establishment of a new discourse within the study of language and communication disorders. Instances of recurring aphasia and acquired brain injury are discussed in an empirical observation study through a theoretical lens that combines Integrational Linguistics, ethnomethodology, Conversation Analysis and practice theory. In doing so, this interdisciplinary analysis adds a person-centered perspective to existing ethnographic approaches. It addresses a significant gap in our understanding of the social/communicative/interactional consequences of brain injury for everyday life by focusing on the practical problems that individuals with communication difficulties and acquired brain damage - and their care-takers, family and friends - have to solve in everyday life, and how they solve them. This innovative work will appeal to health and social care practitioners and care-givers, in addition to scholars of health communication, cognitive, psycho- and sociolinguistics.
Love and Liberation
Title | Love and Liberation PDF eBook |
Author | Lauren Carruth |
Publisher | Cornell University Press |
Pages | 291 |
Release | 2021-10-15 |
Genre | Social Science |
ISBN | 1501759493 |
Lauren Carruth's Love and Liberation tells a new kind of humanitarian story. The protagonists are not volunteers from afar but rather Somali locals caring for each other: nurses, aid workers, policymakers, drivers, community health workers, and bureaucrats. The contributions of locals are often taken for granted, and the competencies, aspirations, and effectiveness of local staffers frequently remain muted or absent from the planning and evaluation of humanitarian interventions structured by outsiders. Relief work is traditionally imagined as politically neutral and impartial, and interventions are planned as temporary, extraordinary, and distant. Carruth provides an alternative vision of what "humanitarian" response means in practice—not driven by International Humanitarian Law, the missions of Western relief organizations, or trends in the aid industry or academia but instead by what Somalis call samafal. Samafal is structured by the cultivation of lasting relationships of care, interdependence, kinship, and ethnic solidarity. Samafal is also explicitly political and potentially emancipatory: humanitarian responses present opportunities for Somalis to begin to redress histories of colonial partitions and to make the most out of their political and economic marginalization. By centering Love and Liberation around Somalis' understanding and enactments of samafal, Carruth offers a new perspective on politics and intervention in Africa.