This volume brings together two parallel fields of interest. One is the understanding among psychologists and other social scientists of the limits to psychometric measurement, and the challenges in generating information about quality of life and wellbeing that enable comparison across time and place, at both individual and population levels. The second is the interest among anthropologists and others in the lived experience of chronic illness and disability, including the unpredictable fluctuations in perceived health and capability. Chronic conditions and physical impairments are assumed to impact negatively on people’s quality of life, affecting them psychologically, socially and economically. While some of these conditions have declined in prevalence, as a result of prenatal diagnosis, early successful interventions, and changes in medical technology and surgery, many of these conditions are on the increase as a consequence of improved life-saving medication and technology, and greater longevity. ‘Quality of life’ is often used as an indicator for successful and high quality health services, and good access to medical attention and surgery – for hip replacements or laser surgery to improve vision, for instance. But it is also used as an argument against interventions, when such interventions are seen to prolong life for its own sake. Yet we also know that people vary their idea of quality as a result of the context of fluctuations in their own health status, the presence or absence of pain or discomfort, and as a result of variations in social and economic contextual factors. In exploring these questions, this volume contributes to emerging debates related to individual health outcomes, but also to the social and other individual determinants that influence everyday life. Understanding these broader contextual factors will contribute to our knowledge of the kinds of services, support systems, and infrastructure that provide people with good ‘quality of life’ and a sense of wellbeing, regardless of their physical health, capability and functioning. The volume includes scholars from all continents who have been encouraged to think critically, and to engage with the descriptive, methodological, social, policy and clinical implications of their work.

The concepts of quality of life and personal outcomes -- Quality domains and indicators -- Measuring personal outcomes: an information collection process -- Managerial strategies: opening the doors inward -- Personal outcome measures: values and metrics for an integrated management system -- Rationale for systems-level performance indicators that reflect personal outcomes -- Considerations in developing performance indicators at the macro level -- How do I use performance indicator data? -- Reframing quality and rethinking quality improvement -- Emerging challenges and opportunities.

A refreshing book that can hold the reader's interest throughout. Quality of Life and Disability should be a compulsory text for all students in the disability field and would make a useful one for experienced practitioners including social workers.' - Australian Social Work 'Among the recent proliferation of books on quality of life, this is a standout! Not only is Quality of Life and Disability: An Approach for Community Practitioners placed squarely in the disability field, but it has an applied emphasis that is rare for a topic that so abounds in vague and often conflicting theories and terminologies. Rather than burdening the reader with the conceptual conundrums of a construct as ambitious as whole of life quality, Brown and Brown dive into the real life issues. This quality of life text will appeal to many practitioners in the disability field. A welcome addition to the bookshelves of many practitioners.' - Paul Bramston, University of Southern Queensland, Australia 'Excellent guide demonstrating to practitioners, not only what they have to do to increase the quality of life of the people they look after, but also how they should start doing it.' - Wspolne Tematy 'A remarkably rich mixture of experience, guidance and insight into the determination of people's quality of life, and into ways in which a wide variety of care staff, managers and policy-makers can understand and respond to disabled people's wants and needs.' - Care and Health magazine 'One of the most refreshing approaches in the contemporary literature on quality of life and disability. The authors are to be congratulated for the very user friendly way the book has been designed.' - Trevor R. Parmenter, University of Sydney 'This book reflects the authors' extensive experience and admirable insight as they bring quality of life ideas closest to those who are in the best position to apply them - the practitioners. Useful, stimulating and well written.' - Robert L. Schalock, Hastings College, Nebraska 'The authors weave their text seamlessly, reminding us at every turn that quality of life varies across individuals, cultures and time... tightly-structured and practical.' - Patricia Noonan Walsh, University College, Dublin 'This excellent book is a valuable contribution to training literature in the field of community rehabilitation.' - Mitchell Clark, Mount Royal College, Calgary, Canada Quality of life - physical, psychological and environmental well-being - is a crucial consideration for professionals working with people with a disability. The authors of this practical book apply ideas about quality of life to the field of disability to assist front-line professionals, managers and policy-makers in effective service provision. They examine the historical context of the concept of quality of life and discuss the application of quality of life in the daily lives of people who have disabilities. Using recent studies to show how the development of quality of life approaches have led to changes in rehabilitation, and how an understanding of the issue can inform practice in assessment, intervention, management and policy, this is an indispensable book for all practitioners and managers working with people with disabilities.

This project draws together the diverse strands of the debate regarding disability in a way never before combined in a single volume. After providing a representative sampling of competing philosophical approaches to the conceptualization of disability as such, the volume goes on to address such themes as the complex interplay between disability and quality of life, questions of social justice as it relates to disability, and the personal dimensions of the disability experience. By explicitly locating the discussion of various applied ethical questions within the broader theoretical context of how disability is best conceptualized, the volume seeks to bridge the gap between abstract philosophical musings about the nature of disease, illness and disability found in much of the philosophy of medicine literature, on the one hand, and the comparatively concrete but less philosophical discourse frequently encountered in much of the disability studies literature. It also critically examines various claims advanced by disability advocates, as well as those of their critics. In bringing together leading scholars in the fields of moral theory, bioethics, and disability studies, this volume makes a unique contribution to the scholarly literature, while also offering a valuable resource to instructors and students interested in a text that critically examines and assesses various approaches to some of the most vexing problems in contemporary social and political philosophy.

The book is unique in two distinct ways. First, it focuses on improving quality of life in contrast to other books that have tended to focus more on its conceptualization and assessment. Second, it deals with improving quality of life in a variety of disabled populations, not just one, and includes chapters on people with chronic mental or physical conditions and those without disabilities at all (i.e. so-called normal people). The book outlines some of the challenges and controversies in the quality-of-life domain and attempts to synthesize the key issue and to draw generalizable conclusions. The book is mainly for university students and faculty and practitioners from various disciplines working in the field. It will also interest those members of the general public who wish to improve their own quality of life or that of their relatives or friends.

We all long for a life of purpose and fulfillment. Striving for high quality of life for us and those we care for is a powerful motivator. Many busy people dream of being lazy by a pool fanned by a soft summer breeze, but this does not last. A short time of rest and replenishment is quickly replaced by boredom and a sense of purposelessness. Quality of life is much deeper than material comfort, though this has a role. Sadly in our world today, many people live lives lacking in meaning and value: the unemployed, the underemployed, those with disabilities who would like to contribute to society but are deprived the opportunity. Their quality of life is not what it could be. In this book, we have attempted to provide examples of how people face challenges, and the family members, professionals and care personnel who support them can be helped and supported through services working within a quality of life framework. The book provides a challenge to be addressed by the individual, their families, local communities, governments, international organizations and the society at large.

The Routledge Handbook of Medical Anthropology provides a contemporary overview of the key themes in medical anthropology. In this exciting departure from conventional handbooks, compendia and encyclopedias, the three editors have written the core chapters of the volume, and in so doing, invite the reader to reflect on the ethnographic richness and theoretical contributions of research on the clinic and the field, bioscience and medical research, infectious and non-communicable diseases, biomedicine, complementary and alternative modalities, structural violence and vulnerability, gender and ageing, reproduction and sexuality. As a way of illustrating the themes, a rich variety of case studies are included, presented by over 60 authors from around the world, reflecting the diverse cultural contexts in which people experience health, illness, and healing. Each chapter and its case studies are introduced by a photograph, reflecting medical and visual anthropological responses to inequality and vulnerability. An indispensible reference in this fastest growing area of anthropological study, The Routledge Handbook of Medical Anthropology is a unique and innovative contribution to the field.