Examining mothers of newly diagnosed disabled children within the context of new reproductive technologies and the discourse of choice, this book uses anthropology and disability studies to revise the concept of "normal" and to establish a social environment in which the expression of full lives will prevail.

In recent decades, there has been a substantial turn towards narrative and life history study. The embrace of narrative and life history work has accompanied the move to postmodernism and post-structuralism across a wide range of disciplines: sociological studies, gender studies, cultural studies, social history; literary theory; and, most recently, psychology. Written by leading international scholars from the main contributing perspectives and disciplines, The Routledge International Handbook on Narrative and Life History seeks to capture the range and scope as well as the considerable complexity of the field of narrative study and life history work by situating these fields of study within the historical and contemporary context. Topics covered include: • The historical emergences of life history and narrative study • Techniques for conducting life history and narrative study • Identity and politics • Generational history • Social and psycho-social approaches to narrative history With chapters from expert contributors, this volume will prove a comprehensive and authoritative resource to students, researchers and educators interested in narrative theory, analysis and interpretation.

This groundbreaking text makes an intervention on behalf of disability studies into the broad field of qualitative inquiry. Ronald Berger and Laura Lorenz introduce readers to a range of issues involved in doing qualitative research on disabilities by bringing together a collection of scholarly work that supplements their own contributions and covers a variety of qualitative methods: participant observation, interviewing and interview coding, focus groups, autoethnography, life history, narrative analysis, content analysis, and participatory visual methods. The chapters are framed in terms of the relevant methodological issues involved in the research, bringing in substantive findings to illustrate the fruits of the methods. In doing so, the book covers a range of physical, sensory, and cognitive impairments. This work resonates with themes in disability studies such as emancipatory research, which views research as a collaborative effort with research subjects whose lives are enhanced by the process and results of the work. It is a methodological approach that requires researchers to be on guard against exploiting informants for the purpose of professional aggrandizement and to engage in a process of ongoing self-reflection to clear themselves of personal and professional biases that may interfere with their ability to hear and empathize with others.

Introduction: the consequences of newborn screening -- The expansion of newborn screening -- Patients-in-waiting -- Shifting disease ontologies -- Is my baby normal? -- The limits of prevention -- Does expanded newborn screening save lives? -- Conclusion: the future of expanded newborn screening

A comprehensive overview of the interdisciplinary field of Women's and Gender Studies, featuring original contributions from leading experts from around the world The Companion to Women's and Gender Studies is a comprehensive resource for students and scholars alike, exploring the central concepts, theories, themes, debates, and events in this dynamic field. Contributions from leading scholars and researchers cover a wide range of topics while providing diverse international, postcolonial, intersectional, and interdisciplinary insights. In-depth yet accessible chapters discuss the social construction and reproduction of gender and inequalities in various cultural, social-economic, and political contexts. Thematically-organized chapters explore the development of Women's and Gender Studies as an academic discipline, changes in the field, research directions, and significant scholarship in specific, interrelated disciplines such as science, health, psychology, and economics. Original essays offer fresh perspectives on the mechanisms by which gender intersects with other systems of power and privilege, the relation of androcentric approaches to science and gender bias in research, how feminist activists use media to challenge misrepresentations and inequalities, disparity between men and women in the labor market, how social movements continue to change Women's and Gender Studies, and more. Filling a significant gap in contemporary literature in the field, this volume: Features a broad interdisciplinary and international range of essays Engages with both individual and collective approaches to agency and resistance Addresses topics of intense current interest and debate such as transgender movements, gender-based violence, and gender discrimination policy Includes an overview of shifts in naming, theoretical approaches, and central topics in contemporary Women's and Gender Studies Companion to Women's and Gender Studies is an ideal text for instructors teaching courses in gender, sexuality, and feminist studies, or related disciplines such as psychology, history, education, political science, sociology, and cultural studies, as well as practitioners and policy makers working on issues related to gender and sexuality.

This volume seeks to answer the call for richer, more diverse understandings of disability through questions about narrative frameworks in disability research.Narrative is a omnipresent meaning-producing communication form in social life that is both cultural and personal.

Documents an important yet much neglected practice in prenatal medicine Provides a challenging new perspective on how ethically-challenging biomedical technologies are routinised and normalised in a contentious context Offers in-depth research for key debates in sociology, anthropology, bioethics, genetics, and STS Explores how ideas around disability are reproduced in the clinic and feed into wider discourses about disablement in Western culture