Raising a Child with a Neuromuscular Disorder

Raising a Child with a Neuromuscular Disorder
Title Raising a Child with a Neuromuscular Disorder PDF eBook
Author Charlotte E. Thompson
Publisher Oxford University Press, USA
Pages 288
Release 1999
Genre Children
ISBN 0195128435

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A compassionate and comprehensive guide for parents and others who care for children and teenagers with neuromuscular disorders. A large appendix offers resources state by state and country by country.

Raising a Child with a Neuromuscular Disorder

Raising a Child with a Neuromuscular Disorder
Title Raising a Child with a Neuromuscular Disorder PDF eBook
Author Charlotte E. Thompson M.D.
Publisher Oxford University Press
Pages 288
Release 1999-09-09
Genre Family & Relationships
ISBN 0198029462

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Raising a child with a neuromuscular disorder can be a overwhelming experience for even the strongest parent or grandparent. Dr. Charlotte Thompson, a leading authority in pediatric neuromuscular disorders, draws on her 38 years of experience treating children with muscular dystrophy, spinal atrophy, congenital and mitochondrial myopathies, Charcot-Marie-Tooth, and all the childhood neuromuscular disorders. Her book provides not only medical facts but much practical advice on how to cope with the many challenges of day-to-day parenting a child with neuromuscular disease. Dr. Thompson discusses how to cope with the initial diagnosis of a neuromuscular disorder and then suggests ways to get beyond the shock, numbness, and anger that may occur. She describes each of the principal diseases giving the history, signs and symptoms, the usual course, outcome, genetics, and any possible treatments. Subsequent chapters offer advice on when to ask for a second opinion about the diagnosis, how to navigate the medical maze and work with a child's medical team. Tips on finding the most appropriate school placement and developing an individual education program (IEP) are invaluable. Dr. Thompson stresses the importance of taking one day at a time and insists that parents must care for themselves. She offers suggestions for developing family closeness and even how to make time for fun. Wise advice from parents of children with neuromuscular disease is inserted in boxes throughout the chapters. A large appendix gives resources state by state and country by country. There is no training that prepares you to be the parent of a child with a disability, but Raising a Child with a Neuromuscular Disorder should be a great help to parents, grandparents, and anyone who cares for a child or young person.

Caring for Children Who Have Severe Neurological Impairment

Caring for Children Who Have Severe Neurological Impairment
Title Caring for Children Who Have Severe Neurological Impairment PDF eBook
Author Julie M. Hauer
Publisher JHU Press
Pages 480
Release 2013-08-01
Genre Health & Fitness
ISBN 1421409380

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Hauer offers hope and practical coping strategies in equal measure.

The Wiley Handbook of Anxiety Disorders

The Wiley Handbook of Anxiety Disorders
Title The Wiley Handbook of Anxiety Disorders PDF eBook
Author Paul Emmelkamp
Publisher John Wiley & Sons
Pages 1442
Release 2014-05-12
Genre Psychology
ISBN 111877535X

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This state-of-the-art Handbook on the research and treatment of anxiety and related disorders is the most internationally and clinically oriented Handbook currently available, encompassing a broad network of researchers, from leading experts in the field to rising stars. The very first handbook to cover anxiety disorders according to the new DSM-5 criteria Published in two volumes, the International Handbook provides the most wide-ranging treatment of the state-of-the-art research in the anxiety disorders Offers a truly international aspect, including authors from different continents and covering issues of relevance to non-Western countries Includes discussion of the latest treatments, including work on persistence of compulsions, virtual reality exposure therapy, cognitive bias modification, cognitive enhancers, and imagery rescripting Covers treatment failures, transdiagnostic approaches, and includes treatment issues for children as well as the older population Edited by leaders in the field, responsible for some of the most important advances in our understanding and treatment of anxiety disorders 2 Volumes

A Video Atlas of Neuromuscular Disorders

A Video Atlas of Neuromuscular Disorders
Title A Video Atlas of Neuromuscular Disorders PDF eBook
Author Aziz Shaibani
Publisher Oxford University Press
Pages 785
Release 2024
Genre Education
ISBN 0197632580

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A Video Atlas of Neuromuscular Disorders is the essential reference on adult neuromuscular disorders and their diagnosis and treatment. Perfect for preparing for the neurology and neuromuscular boards, this book and accompanying videos have become an invaluable resource for neurology and neuromuscular training programs, while catering to the too-busy and often-overwhelmed modern doctor with its straightforward structure and language.

Neuromuscular Disorders of Infancy, Childhood, and Adolescence

Neuromuscular Disorders of Infancy, Childhood, and Adolescence
Title Neuromuscular Disorders of Infancy, Childhood, and Adolescence PDF eBook
Author Basil T. Darras
Publisher Elsevier
Pages 1156
Release 2014-12-03
Genre Medical
ISBN 0124171273

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Neuromuscular disorders are diagnosed across the lifespan and create many challenges especially with infants, children and adolescents. This new edition of the definitive reference, edited by the established world renowned authorities on the science, diagnosis and treatment of neuromuscular disorders in childhood is a timely and needed resource for all clinicians and researchers studying neuromuscular disorders, especially in childhood. The Second Edition is completely revised to remain current with advances in the field and to insure this remains the standard reference for clinical neurologists and clinical research neurologists. The Second Edition retains comprehensive coverage while shortening the total chapter count to be an even more manageable and effective reference. - Carefully revised new edition of the classic reference on neuromuscular disorders in infancy, childhood and adolescence. - Definitive coverage of the basic science of neuromuscular disease and the latest diagnosis and treatment best practices. - Includes coverage of clinical phenomenology, electrophysiology, histopathology, molecular genetics and protein chemistry

Fundamentals of Pediatric Neuroanesthesia

Fundamentals of Pediatric Neuroanesthesia
Title Fundamentals of Pediatric Neuroanesthesia PDF eBook
Author Girija Prasad Rath
Publisher Springer Nature
Pages 710
Release 2021-09-07
Genre Medical
ISBN 9811633762

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The book provides an excellent review of all the clinical aspects of neuroanesthesia in children, including neurosurgeries during fetal state to neonatal, infancy, toddler, and school-going age groups. To provide optimal anesthetic care in children undergoing neurosurgery, the care provider must have adequate knowledge on the developing brain and spinal cord, and the effect of anesthetics on the neuronal tissue, and the inherent issues pertaining to neurologic lesions. This book covers the diagnostic, imaging, surgical as well as anesthetic managements of all the neurosurgical problems in children. The chapters include a wide range of topics from basic neurophysiology to general concerns for pediatric neuroanesthesia, including fluid management, blood transfusion, temperature regulation, and surgical positioning, as well as specific issues such as anesthesia for brain tumor surgery, hydrocephalus, neural tube defects, cerebrovascular surgeries such as aneurysmal surgery, arteriovenous malformations (AVMs), Moyamoya disease, and vein of Galen malformation, functional neurosurgery, epilepsy surgery, neuroendoscopy, craniovertebral junction anomalies, spinal surgeries, neurotrauma, and brain abscess with congenital heart diseases. Interesting topics like neuroanesthesia in remote locations, regional anesthesia during neurosurgery, and anesthesia for children with neuromuscular disease are also discussed. Moreover, the book elaborates on advanced neuroanesthesia techniques during fetal neurosurgery and craniopagus separation surgery; and the postoperative intensive care management aspects in each chapter. It is supplemented with figures depicting surgical procedures and positioning, neuroimages, tables and illustrations for easy understanding. This book caters to neuroanesthesiologists, pediatric anesthesiologists, residents, and fellows of anesthesia or neuroanesthesia, practicing anesthesiologists, pediatric neurointensivists, nurse anesthetists, neurosurgeons, and pediatric neurosurgeons. It also serves as a reference book for the DM (neuroanesthesiology and neurocritical care), DNB-SS (neuroanesthesiology), and MD (anesthesiology) curriculums apart from anesthesia residency and pediatric anesthesia/ neurosurgery fellowship programs offered at various Institutions worldwide.