Narrative medicine, an interdisciplinary field that brings together the studies of literature and medicine, offers both a way of understanding patient identity and a method for developing a clinician’s responsiveness to patients. While recognizing the value of narrative medicine in clinical encounters, including the ethical aspects of patient discourse, Tara Flanagan examines the limits of narrative practices for patients with cognitive and verbal deficits. In Narrative Medicine in Hospice Care: Identity, Practice, and Ethics through the Lens of Paul Ricoeur, Flanagan contends that the models of selfhood and care found in the work of Ricoeur can offer a framework for clinicians and caregivers regardless of the verbal and cognitive capabilities of a patient at the end of life. In particular, Ricoeur’s concept of patient identity connects with the narrative method of life review in hospice and offers an opportunity to address the religious and spiritual dimensions of the patient experience.

The use of narrative methods has a long history in palliative care, pioneered by Dame Cicely Saunders, founder of the modern hospice movement, Narrative and Stories in Health Care provides a vibrant, multidisciplinary examination of work with narrative and stories in contemporary health and social care, with a focus on the care of people who are ill and dying. It animates the academic literature with provocative 'real-world' examples from international contributors, including palliative care service users and those working in the social and human sciences, medicine, theology, and the creative arts. Narrative and Stories in Health Care addresses and clarifies core issues: What is a narrative? What is a story? What are some of the main methods and models that can be used and for what purposes? What practical and ethical dilemmas can the methods entail in work with illness, death and dying? As well as highlighting the power of stories to create new possibilities, the book also acknowledges the conceptual, methodological and ethnical problems and challenges inherent in narrative work. As the hospice and palliative care movement evolves to meet the challenges of 21st century health care, this fascinating book highlights how narratives and stories can be attended to in ways that are productive, ethical, and caring.

Narrative medicine emerged in response to a commodified health care system that places corporate and bureaucratic concerns over the needs of the patient. This book provides an introduction to the principles of narrative medicine and guidance for implementing narrative methods.

This book examines all aspects of narrative medicine and its value in ensuring that, in an age of evidence-based medicine defined by clinical trials, numbers, and probabilities, clinical science is firmly embedded in the medical humanities in order to foster the understanding of clinical cases and the delivery of excellent patient care. The medical humanities address what happens to us when we are affected by a disease and narrative medicine is an interdisciplinary approach that emphasizes the importance of patient narratives in bridging various divides, including those between health care professionals and patients. The book covers the genesis of the medical humanities and of narrative medicine and explores all aspects of their role in improving healthcare. It describes how narrative medicine is therapeutic for the patient, enhances the patient–doctor relationship, and allows the identification, via patients' stories, of the feelings and experiences that are characteristic for each disease. Furthermore, it explains how to use narrative medicine as a real scientific tool. Narrative Medicine will be of value for all caregivers: physicians, nurses, healthcare managers, psychotherapists, counselors, and social workers. “Maria Giulia Marini takes a unique and innovative approach to narrative medicine. She sees it as offering a bridge – indeed a variety of different bridges – between clinical care and ‘humanitas’. With a sensitive use of mythology, literature and metaphor on the one hand, and scientific studies on the other, she shows how the guiding concept of narrative might bring together the fragmented parts of the medical enterprise”. John Launer, Honorary Consultant, Tavistock Clinic, London UK

The Edge of Medicine tells the stories of dying children and their families, capturing the full range of uncertainties, hopes and disappointments, and ups and downs of children near the end of life. Dr. Bearison relies on narrative to bridge the disconnect among abstract theories, medical technologies, and clinical realities.

This book is a scholarly collection of interdisciplinary perspectives and practices that examine the positive potential of attending to the voices and stories of those who live and work with illness in real world settings. Its international contributors offer case studies and research projects illustrating how illness can disrupt, highlight and transform themes in personal narratives, forcing the creation of new biographies. As exercises in narrative development and autonomy, the evolving content and expression of illness stories are crucial to our understanding of the lived experience of those confronting life changes. The international contributors to this volume demonstrate the importance of hearing, understanding and effectively liberating voices impacted by illness and change. Contributors include Tineke Abma, Peter Bray, Verusca Calabria, Agnes Elling, Deborah Freedman, Alexandra Fidyk, Justyna Jajszczok, Naomi Krüger, Annie McGregor, Pam Morrison, Miranda Quinney, Yomna Saber, Elena Sharratt, Victorria Simpson-Gervin, Hans T. Sternudd, Mirjam Stuij, Anja Tramper, Alison Ward and Jane Youell.

"A ... memoir about how the essential parts of one young woman's early life--her mother's work as a surgeon and her spiritual practice--led her to become a doctor and to question the premise that medicine exists to prolong life at all costs."--