Living with CMT

Living with CMT
Title Living with CMT PDF eBook
Author Dawn Johnson
Publisher Suburbanbuzz.com
Pages 196
Release 2020-10-29
Genre
ISBN 9781736082003

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Welcome to the world of Charcot Marie Tooth (CMT) disease, a rare, progressive and hereditary neurological condition. Author Dawn Johnson takes readers through the physical challenges-the toll on the body, passing the disease on to her son, numerous surgeries, and ongoing treatments. She addresses the emotional toll as well, weighing in on the societal issues of bullying, lack of CMT awareness, giving back and paying it forward. Most of all, Dawn's spiritual journey is inspirational. As a wife, mother, daughter, co-worker and friend, she shares a raw and courageous view of coping, while trusting God's plan for her life.

Walk A Mile In My Braces

Walk A Mile In My Braces
Title Walk A Mile In My Braces PDF eBook
Author Youth of the Cmta
Publisher
Pages 96
Release 2021-11-26
Genre
ISBN 9780578803401

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Walk A Mile In My Braces is a journey through the experience of challenge as taught by the young. 75 youth who all experience Charcot Marie Tooth Disease (CMT) share their joys, their struggles, and the wisdom they have learned by walking through life with challenge. Prepare to be inspired by all that these young authors share with regards to their scars, lessons learned, and gifts received by rising to their challenge.

Neurological Diseases and Pregnancy

Neurological Diseases and Pregnancy
Title Neurological Diseases and Pregnancy PDF eBook
Author Emma Ciafaloni
Publisher Oxford University Press
Pages 417
Release 2018
Genre Medical
ISBN 0190667354

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For a woman of reproductive age, any medical appointment is a pre-conception visit and an opportunity to address pre-existing conditions that affect pregnancy and the maternal-fetal dyad. However, many neurologic conditions are rarely seen in pregnancy, and limited experience and knowledge may prevent the team from developing a shared approach to these complex conditions during pregnancy. Neurological Diseases and Pregnancy: A Coordinated Care Model for Best Management brings together experts across the disciplines of maternal fetal medicine, neurology, obstetrics, family planning, genetics, anesthesia, psychiatry, neurosurgery, and lactation to provide a multi-disciplinary, comprehensive, protocol-driven guide on best care for patients with neurologic disease before, during and after pregnancy. Each chapter provides a detailed care map on each unique disorder, and discusses the use of neurological medications during pregnancy and in lactation. Through this multi-disciplinary approach clinicians can navigate the complexities of preconception and pregnancy care, and help to optimize outcomes for the mother-infant dyad. Beyond pregnancy care, this volume further serves as a resource on best care for the life-course of women affected by neurologic disease including pre-pregnancy planning, genetic counseling, contraception, and sexuality in neurologic disease, as well as post-partum depression and menopausal neurologic changes.

Cmt and Me

Cmt and Me
Title Cmt and Me PDF eBook
Author Linda D Crabtree
Publisher Linda D. Crabtree
Pages
Release 2017-12-20
Genre
ISBN 9781775058205

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When Linda Crabtree was growing up in a small Canadian city in the early '40s, the future for a little kid with a disability didn't look too promising. Seventy-five years later she writes about her forays into education, journalism, running a charity, publishing, art, antiques, designing a house and her travels. The emotional undercurrents of love, the question of children, marriage, alcoholism, divorce, marriage again and great loss are explored. And then there's her love of dogs. It has been a roller-coaster of a ride and this passionate, entrepreneurial woman has kept plugging away all the while dealing with an inherited neuromuscular condition called Charcot-Marie-Tooth (CMT) disease, named after three doctors, that has slowly progressed over the years to take away her ability to walk and is now robbing her of the use of her hands. The recipient of 28 awards, medals and honours, Linda is proud to be a Member of the Order of Canada and the Order of Ontario and has been in Canada's Who's Who for the past 20 years. Find out why. Excerpt: " ...With $15 for paper and envelopes and a few postage stamps, I typed letters to editors of all of the newspapers in Canada, telling them that I had a rare disease with a strange name, knew no one else with it, and was looking for information and people to share our concerns and triumphs. My letters were published in newspapers across the country and within a few weeks I had received so many letters from people also diagnosed with CMT, or suspecting they had it, and wanting information that I knew I was onto something. My curiosity was piqued. How many people with CMT were out there? Now I had a real challenge. How many could I find? I went back to the library and photocopied all the addresses for the newspapers in the United States. Those letters went out and, before I knew it, I had more than 350 replies from people all wanting to know more. Trouble was, I didn't have more to give them. We'd have to learn from each other. And there was no way I could type 350 individual letters in reply. I had to figure out a way to answer them all at the same time. Personal computers were a rare commodity at that time. The solution to my dilemma turned out to be a mass mailing and in the summer of 1984 the CMT Newsletter was born. It wasn't much - only eight pages, the columns typed, cut out and pasted down and then everything photocopied - but it was something."

Arlene on the Scene

Arlene on the Scene
Title Arlene on the Scene PDF eBook
Author Carol Liu
Publisher Greenleaf Book Group
Pages 218
Release 2010
Genre Juvenile Fiction
ISBN 1934572543

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Arlene knows what it's like to be different. But in her quest to become the youngest student government officer in Greenwood Elementary history, she finally realizes the value in embracing differences.

Understanding CMT

Understanding CMT
Title Understanding CMT PDF eBook
Author Thomas Whiting
Publisher Independently Published
Pages 0
Release 2023-12-10
Genre
ISBN

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Understanding CMT: A Comprehensive Guide to Charcot-Marie-Tooth Disorder Unveiling the Tapestry of Charcot-Marie-Tooth: A Comprehensive Compendium Embark on a journey through the intricate landscape of Charcot-Marie-Tooth (CMT) with this comprehensive compendium. Authored by Thomas, a passionate advocate with a deep connection to the CMT community, this compendium goes beyond the scientific nuances, weaving together the stories, challenges, and triumphs of individuals living with CMT. From the exploration of genetic foundations to the latest advancements in research and the resilient spirit of the CMT community, each chapter unfolds a new layer of understanding. Delve into the personal narratives, gain insights from expert perspectives, and discover the collective strength that defines the CMT journey. As you turn the pages, you'll witness the celebration of achievements, the fostering of resilience, and the nurturing of hope that permeates every facet of the CMT experience. thomas invites you to join the conversation, connect with the community, and be part of a movement dedicated to making a positive impact. Whether you are navigating CMT firsthand, supporting a loved one, or seeking to understand more about this genetic disorder, this compendium offers a holistic perspective. Together, let's unveil the tapestry of Charcot-Marie-Tooth-a tapestry woven with stories of courage, advocacy, and the collective hope that transcends challenges.

Model Rules of Professional Conduct

Model Rules of Professional Conduct
Title Model Rules of Professional Conduct PDF eBook
Author American Bar Association. House of Delegates
Publisher American Bar Association
Pages 216
Release 2007
Genre Law
ISBN 9781590318737

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The Model Rules of Professional Conduct provides an up-to-date resource for information on legal ethics. Federal, state and local courts in all jurisdictions look to the Rules for guidance in solving lawyer malpractice cases, disciplinary actions, disqualification issues, sanctions questions and much more. In this volume, black-letter Rules of Professional Conduct are followed by numbered Comments that explain each Rule's purpose and provide suggestions for its practical application. The Rules will help you identify proper conduct in a variety of given situations, review those instances where discretionary action is possible, and define the nature of the relationship between you and your clients, colleagues and the courts.