Kickin' ALS

Kickin' ALS
Title Kickin' ALS PDF eBook
Author Carrey Dewey
Publisher
Pages
Release 2019-10
Genre
ISBN 9781941953877

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Carrey Dewey and her husband, Eric, worked hard to build their dream life: a strong marriage, three incredible kids, and a beautiful home. It all came crashing down when Carrey was diagnosed at age 42 with amyotrophic lateral sclerosis (ALS) - a disease that had no treatment or cure, a disease that is 100 percent fatal. Her doctor told her, "Get your paperwork in order and go make memories." But Carrey, a smart, courageous, and often very funny woman, was determined to do more - to spend what life she had left advocating for ALS research and educating people about the disease.Kickin' ALS is a compilation of Carrey's personal Facebook posts, written from shortly after her diagnosis in June 2014 until just before her death in May 2018. It is a powerful and poignant chronicle of one woman's experience with the disease made famous through the Ice Bucket Challenge.More than 5,000 people in the United States are diagnosed with ALS each year, according to the ALS Association, and it is estimated that at least 16,000 Americans may be living with ALS at any given time.Proceeds from the sale of this book will be donated to organizations supporting ALS research and education, as well as ALS patients and their families.

Living All the Way

Living All the Way
Title Living All the Way PDF eBook
Author Barbara Victoria
Publisher iUniverse
Pages 90
Release 2018-10-11
Genre Family & Relationships
ISBN 1532059574

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When a hospice nurse explained the physical and emotional benchmarks in the end stages of life that my mother-in-law would experience after her cancer metastasized, a light went on in my head. I had been schooled in the physical and emotional phases of birth with Lamaze; dying is the journey at the other end of life! Both are wrought on sacred ground, accompanied by pain and awe and the unexpected. And both can reveal true miracles that cannot be foreseen unless we get out of the way and allow the process to reveal itself. Fifteen years later—eleven as a hospice volunteer and four on an interdisciplinary team—I appreciate the practical factors, financial and physical, of hospice care. The spiritual dimensions make this work I can’t NOT do. If we put away our fear, we can make choices for ourselves and with our loved ones that allow living all the way to the end with grace and dignity and peace.

How ALS Changed Everything

How ALS Changed Everything
Title How ALS Changed Everything PDF eBook
Author Jan Murray
Publisher
Pages 210
Release 2014-12-21
Genre Amyotrophic lateral sclerosis
ISBN 9781500689261

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A family's journey through ALS/Amyotrophic Lateral Sclerosis, aka Lou Gehrig's Disease, taking the reader from shock and devastation to acceptance, hope and LIFE despite the terminal illness. "How ALS Changed Everything" follows the Murray family through everyday, real, raw experiences with ALS, its effects on them as individuals, their children, their marriage, and faith. The story immediately draws the reader into the Murray's lives and is a poignant tale of facing a monster of an illness, with little to no hope, with bravery, yet fear, and still coming out on top in happiness. Eleven other touching stories from ALS families from around the country are also included in the book. Inspiring. Heart wrenching. Compelling.

The Ice Bucket Challenge

The Ice Bucket Challenge
Title The Ice Bucket Challenge PDF eBook
Author Casey Sherman
Publisher University Press of New England
Pages 186
Release 2017-09-05
Genre Biography & Autobiography
ISBN 1512601594

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While everyone knows of the Ice Bucket Challenge, the viral craze that swept the nation in summer 2014, too few know the truly inspirational story behind it. Pete Frates was a man at war with his own body. A man whose love for others was unshakable. A man who refused to fight alone, and in so doing mobilized a global army to combat one of the most devastating diseases on earth: ALS, or Lou Gehrig's disease. When disease crippled Frates, the former Boston College baseball star turned tragedy into inspiration. Pete's story is a testament to the power of love, the steadfastness of family, the generosity of strangers, and the compassion of crowds. Half of the authors' proceeds will go to the Frates family.

The Highest Hurdle

The Highest Hurdle
Title The Highest Hurdle PDF eBook
Author Kim Wroblewski
Publisher Elm Hill
Pages 278
Release 2019-05-07
Genre Biography & Autobiography
ISBN 0310101859

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It was year of the Ice Bucket Challenge when MaryFran Peterlin-Kolp was diagnosed with Amyotrophic Lateral Sclerosis. A top college athlete and having earned a Ph. D in Exercise Physiology she was never afraid to rise up to a challenge and she decided that she would do "whatever it takes" to try to find a cure. MaryFran always had a strong Catholic Faith to rely on, great family support and would soon see how a small Northern Michigan town would rally around her. She would explore not just conventional western medicine but alternative treatments and therapies, diets, and of course rely on her faith to guide her. Using her positive attitude she takes us on her ALS journey with the belief that God chose her so that others could be spared with the hope that maybe she could help find a cure. You will laugh, cry and be amazed at how one woman could have such a lasting impact on a community and how that community helped to care for her. MaryFan will show you that all you need is faith, family, and some "Frantabulous Friends" to live a happy life.

The Only Way to Live: My Life and Coping with ALS

The Only Way to Live: My Life and Coping with ALS
Title The Only Way to Live: My Life and Coping with ALS PDF eBook
Author Michael Boman
Publisher Lulu.com
Pages 160
Release 2012-06-26
Genre Biography & Autobiography
ISBN 1300011327

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​"The Only Way to Live" is a quick read filled with many entertaining stories. Michael has not held back anything in this book - brutal honesty and vulnerability when he talks about going from a life of non-stop adventure to his latest challenge of life - fighting ALS. An amazing tale of a kid with all the odds against him, moving all over the country multiple times with multiple family members in and out of his life, growing up and working hard to get what he wants in a career. Throughout the childhood stories, his young adult escapades, and through his years starting his career, it is apparent that Michael lives life to the fullest!​

Hold On, Let Go

Hold On, Let Go
Title Hold On, Let Go PDF eBook
Author Nadine Sands
Publisher
Pages
Release 2016-10-12
Genre
ISBN 9780995334601

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This "stay positive in difficult times" story is about a man with ALS (also known as Lou Gehrig's disease) and his wife who writes about their inspiring journey in her blog called ALS With Courage. In Hold On, Let Go, Nadine Sands expands on her blog, which takes her readers from pre-diagnosis to Michael's complete paralysis, and reflects throughout on her husband's strength and determination; on their hope and faith in God; and the sorrow and joy of learning to let go. "Mike has let go of working, walking, talking, eating, moving, and slowly he lets go of breathing. And I am letting go of him.... With each loss, we gain; by losing so much, we have more than we could imagine." Follow Nadine as she learns to savour every moment, to give thanks in all circumstances, and to cherish the love. "Our love would never have known these depths had Mike been taken away suddenly. Instead we were given three to five years to rejoice, pray, and give thanks together every day."