This monograph articulates eight key elements of a family-centered approach to policy and practice for children needing specialized health and developmental services. An introductory section reviews the development of the first edition of the monograph in 1987 and its widespread dissemination and acceptance since that time. Each of the following eight chapters then addresses one of the following elements: (1) recognition that the family is the constant in the child's life, while the service systems and support personnel within those systems fluctuate; (2) facilitation of family/professional collaboration at all levels of hospital, home, and community care; (3) exchange of complete and unbiased information between families and professionals in a supportive manner; (4) respect for cultural diversity within and across all families including ethnic, racial, spiritual, social, economic, educational, and geographic diversity; (5) recognition of different methods of coping and promotion of programs providing developmental, educational, emotional, environmental, and financial supports to families; (6) encouragement of family-to-family support and networking; (7) provision of hospital, home, and community service and support systems that are flexible, accessible, and comprehensive in meeting family-identified needs; and (8) appreciation of families as families, recognizing their wide range of strengths, concerns, emotions, and aspirations beyond their need for specialized health and developmental services and support. Checklists for evaluating these elements are attached. (Contains 160 references.) (DB)

Based on the Diagnostic and Statistical Manual for Primary Care: Child and Adolescent Version (DSM-PC), this state-of-the-art reference expertly guides you through normal and abnormal development and behavior for all pediatric age groups. See how neurobiological, environmental, and human relationship factors all contribute to developmental and behavioral disorders and know how to best diagnose and treat each patient you see. Accurately identify developmental and behavioral problems using the Diagnostic and Statistical Manual for Primary Care criteria, and evidence-based guidelines. Gain a clear understanding of the "normal" boundaries and variations within specific disorders. Make informed therapeutic decisions with the integration of basic science and practical information and recommendations from the Society of Developmental and Behavioral Pediatrics and the American Academy of Pediatrics. Avoid legal and ethical implications by consulting the Law, Policy, and Ethics chapter. Download the DSM PC criteria from the included CD, as well as tables and illustrations for use in electronic presentations.

Family-Centred Assessment and Intervention in Pediatric Rehabilitation analyzes the effectiveness of Family-Centred Services (FCS) for children with disabilities or chronic illnesses. This text provides you with the exact definition of FCS and offers proof that parent involvement in children's treatment greatly enhances therapy. You can use the suggestions and methods to integrate parents into therapy, maximizing the family's intervention experiences and making your work more successful and effective. Many clinicians agree that families play a crucial part in deciding what intervention strategies are best for their children. From this text, you will learn that listening to parents and valuing parental input will give you insight into the goals, needs, and ambitions families have for their children. This enables you to choose, with the parent, the interventions that best suit your patients’needs and the needs of their families. In addition to information on how to integrate parents and families into intervention, Family-Centred Assessment and Intervention in Pediatric Rehabilitation offers suggestions that will improve your existing FCS or help you implement a family- centred approach, including: performing therapy in natural settings, such as school or home, to make changes in the children's social and physical environments acknowledging the grieving and adaptation process of families while being compassionate and understanding letting parents describe what they would like their child to be able to do and accomplish in the future putting the parents’concerns and requests first, enabling parents to deal with caring for their child supporting parents and reinforcing them when they have innovative and helpful ideas informing parents on the progress of their children and educating parents on methodologies and strategies used in FCS Many of the suggestions derived from the analysis of current data and original research in Family-Centred Assessment and Intervention in Pediatric Rehabilitation have immediate clinical applicability, allowing you to quickly adapt methods into your intervention processes. This text also provides you with information on types of evaluative methods, such as Measure of Processes of Care (MPOC) and Family-Centred Program Rating Scale (Fam PRS), that will help you determine if your FCS program is working efficiently. Emphasizing the goal of parent interaction in FCS services, Family-Centred Assessment and Intervention in Pediatric Rehabilitation offers methods that will improve your work with families and patients, making services more beneficial and relevant to the child and to their families.

The life care plan is a dynamic document that provides an organized plan for the current and future needs of individuals with chronic health care needs. It can serve as a roadmap for the families, caregivers, therapists, physicians, and others involved with the ongoing care of a special needs child. Pediatric Life Care Planning and Case Mana

The most trusted authority in pediatric nursing, Wong's Nursing Care of Infants and Children provides unmatched, comprehensive coverage of pediatric growth, development, and conditions. Its unique 'age and stage' approach covers child development and health promotion as well as specific health problems organized by age groups and body systems. Leading pediatric experts Dr. Marilyn Hockenberry and David Wilson provide an evidence-based, clinical perspective based on nearly 30 years of hands-on experience. Easy to read and extensively illustrated, this edition focuses on patient-centered outcomes and includes updates on topics such as the late preterm infant, immunizations, the H1N1 virus, and childhood obesity. A clear, straightforward writing style makes content easy to understand. Unique Evidence-Based Practice boxes help you apply both research and critical thought processes to support and guide the outcomes of nursing care. Unique Atraumatic Care boxes contain techniques for care that minimize pain, discomfort, or stress. Unique Critical Thinking exercises help you test and develop your own analytical skills. A unique focus on family content emphasizes the role and influence of the family in health and illness with a separate chapter, discussions throughout the text, and family-centered care boxes. Nursing Care Guidelines provide clear, step-by-step, detailed instructions on performing specific skills or procedures. Unique Emergency Treatment boxes serve as a quick reference for critical situations. Unique Cultural Awareness boxes highlight ways in which variations in beliefs and practices affect nursing care for children. A developmental approach identifies each stage of a child's growth. Health promotion chapters emphasize principles of wellness and injury prevention for each age group. Student-friendly features include chapter outlines, learning objectives, key points, references, and related topics and electronic resources to help you study and review important content. A community focus helps you care for children outside the clinical setting. Nursing Care Plans include models for planning patient care, with nursing diagnoses, patient/family goals, nursing interventions/rationales, expected outcomes, and NIC and NOC guidelines. Nursing Tips include helpful hints and practical, clinical information, and Nursing Alerts provide critical information that must be considered in providing care.

The leading text in pediatric nursing, Wong's Nursing Care of Infants and Children takes a unique, easy-to-understand developmental approach to describe the care of children at each age and stage of development. Childhood diseases and disorders are organized by age groups and body systems, and described through the nursing process framework.This edition includes updates on topics such as the new CPR guidelines, immunizations, and pain assessment and management. Written by pediatric experts, Dr. Marilyn Hockenberry and David Wilson, each with nearly 30 years of hands-on experience, this bestseller provides an evidence-based, clinical perspective that shows how the quality of nursing care can impact quality patient outcomes. "A good neonatal and paediatric reference and textbook..." Reviewed by Jo Wilson on behalf of Nursing Times, March 2015 A developmental approach addresses the differences at each stage of the child's growth and enables you to individualize care at the appropriate level for each child. UNIQUE! Quality Patient Outcomes are discussed for major childhood diseases and disorders, showing how nursing care directly impacts patient outcomes. Nursing Care Plans provide models for planning patient care, with rationales explaining why specific nursing interventions have been chosen, and include nursing diagnoses, patient/family goals, nursing interventions/rationales, expected outcomes, and NIC and NOC guidelines. A focus on family-centered care emphasizes the role and influence of the family in health and illness with a separate chapter and Family-Centered Care boxes. Critical thinking exercises use case studies to help you test and develop your own analytical skills. Nursing Care Guidelines provide clear, step-by-step, detailed instructions on performing specific skills or procedures. Nursing Tips include helpful hints and practical, clinical information, and Nursing Alerts provide critical information that must be considered in providing care. An emphasis on wellness includes principles of health promotion and injury prevention for each age group. Drug Alerts highlight important drug-related information for safe, appropriate care. Pathophysiology Reviews explain complicated disease processes with illustrated summary boxes. Complementary & Alternative Therapy boxes include timely information on alternative medicine as a part of complete, comprehensive care. Atraumatic Care boxes contain techniques for care that minimize pain, discomfort, or stress, and provide guidance for performing procedures in a caring manner. Emergency Treatment boxes serve as a quick reference in critical situations.

Children with neurodevelopmental disabilities such as mental retardation or autism present multiple challenges to their families, health care providers, and teachers. Professionals consulted by desperate parents often see the problems from their own angle only and diagnosis and intervention efforts wind up fragmented and ineffective. This book presents a model multidisciplinary approach to care--family-centered and collaborative--that has proven effective in practice. A pillar of the approach is recognition of the importance of performing culturally competent assessment and adjusting service delivery so that is responsive to cultural differences. Detailed case stories illuminate the ways in which the approach can help children with different backgrounds and different disabilities. Most chapters include study questions, lists of resources, and glossaries to facilitate easy comprehension by professionals with different backgrounds--in special education, communication sciences, and disorders, clinical and counseling psychology, neuropsychology and psychiatry, social work, pediatrics--and program administrators as well as students, trainees and educated parents. Caring for Children With Neurodevelopmental Disabilities and Their Families constitutes a crucial new resource for all those professionally and personally concerned with these children.