Parents caring for a child with an intellectual or developmental disability experience significant stress and potential crises, which can contribute to poorer outcomes for the whole family. While previous research has examined parental stress, the experiences of parents with a child in crisis are poorly understood. This study’s objective was to begin to clarify a family’s experience of crisis as well as examine psychometric properties of a measure designed to assess crisis. Parents and caregivers of children and adolescents, age 5 to 17 and diagnosed with an Intellectual or Developmental Disability including Autism Spectrum Disorder completed all measures, reporting on their level of caregiver strain within the past 30 days on the Caregiver Strain Questionnaire (CGSQ) and their current level of crisis on the Brief Family Distress Scale (BFDS). Psychometric data from the BFDS and CGSQ were analyzed to examine aspects of reliability and validity. Additionally, exploratory analyses examined the relationship between demographic characteristics, strain and crisis level. A total of 55 parents/caregivers completed study materials; 52 met eligibility criteria and had usable data on all measures. On average, children were 13.7 years old, and 73.1% were male; 73.1% were the children’s mothers.

The Handbook of Crisis Intervention and Developmental Disabilities synthesizes a substantive range of evidence-based research on clinical treatments as well as organizational processes and policy. This comprehensive resource examines the concept of behavioral crisis in children and adults with special needs and provides a data-rich trove of research-into-practice findings. Emphasizing continuum-of-care options and evidence-based best practices, the volume examines crisis interventions across diverse treatment settings, including public and private schools, nonacademic residential settings as well as outpatient and home-based programs. Key coverage includes: Assessment of problem behaviors. Co-occurring psychiatric disorders in individuals with intellectual disabilities. Family members’ involvement in prevention and intervention. Intensive treatment in pediatric feeding disorders. Therapeutic restraint and protective holding. Effective evaluation of psychotropic drug effects. The Handbook of Crisis Intervention and Developmental Disabilities is a must-have resource for researchers, scientist-practitioners, and graduate students in clinical child, school, developmental, and counseling psychology, clinical social work, behavior therapy/analysis, and special education as well as other related professionals working across a continuum of service delivery settings.

Intellectual and Developmental Disabilities provides a unique contribution not currently available in the professional literature by addressing the experiences and perspectives of families living with or raising a child with a disability. Designed for family therapists, social workers, and other helping professionals, it provides empirically-based, practical information for working with families experiencing intellectual and developmental disabilities of a loved one. This book also provides important information for navigating the various professional systems of care with which these families interface: health care providers, early childhood intervention teams, educational systems, the legal system, and financial planners.

Contemporary Issues in Evaluating Treatment in Neurodevelopmental Disorders, Volume 62 in the International Review of Research in Developmental Disabilities series, highlights new advances in the field, with this new volume presenting interesting chapters on topics such as Considerations for measuring individual outcomes across contexts in Down syndrome: Implications for research and clinical trials, Remotely Monitoring Development and Treatment Outcomes in Families affected by IDD, Psychometric perspectives on developmental outcome and endpoint selection in treatment trials for genetic conditions associated with neurodevelopmental disorder, Evaluating Outcomes within Culturally Diverse Contexts for Children and Youth with Developmental Disabilities, and much more. Other chapters in this release cover Measurement of Social Skills Treatment Outcome in Autism: Moving Beyond Informant Report and Considering Diversity, Cognitive Outcome Measures for tracking Alzheimer's Disease in Down syndrome, A Scoping Review of Psychosocial Interventions for Neurogenetic Conditions across the Lifespan, Clinical Trials and Outcome Measures: Lessons Learned from Chromosome 15 disorders, and more. - Provides the authority and expertise of leading contributors from an international board of authors - Presents the latest release in the International Review of Research in Developmental Disabilities series

Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Ce livre comprend un profil du mouvement de l'intégration au travail et du Supported employment avec une perspective historique, une déclaration des orientations nécessaires à l'intégration sociale, des stratégies d'iontervention reliées à une approche behavioriste sur l'enseignement professionnel et des recommandations pour l'application de programme d'intégration au travail.