EPDF and EPUB available Open Access under CC-BY-NC-ND licence. This important book offers practical advice for using evidence and research in policymaking. The book has two aims. First, it builds a case for ethics and global values in research and knowledge exchange, and second, it examines specific policy areas and how evidence can guide practice. The book covers important policy areas including the GM debate, the environment, Black Lives Matter and COVID-19. Each chapter assesses the ethical challenges, the status of evidence in explaining or describing the issue and possible solutions to the problem. The book will enable policymakers and their advisors to seek evidence for their decisions from research that has been conducted ethically and with integrity.

This Open Access book provides illustrative case studies that explore various research and innovation topics that raise challenges requiring ethical reflection and careful policymaking responses. The cases highlight diverse ethical challenges and provide lessons for the various options available for policymaking. Cases are drawn from many fields, including artificial intelligence, space science, energy, data protection, professional research practice and pandemic planning. Case studies are particularly helpful with ethical issues to provide crucial context. This book reflects the ambiguity of ethical dilemmas in contemporary policymaking. Analyses reflect current debates where consensus has not yet been achieved. These cases illustrate key points made throughout the PRO-RES EU-funded project from which they arise: that ethical judgement is a fluid enterprise, where values, principles and standards must constantly adjust to new situations, new events and new research developments. This book is an indispensable aid to policymaking that addresses, and/or uses evidence from, novel research developments.

Health IT is a major field of investment in support of healthcare delivery, but patients and professionals tend to have systems imposed upon them by organizational policy or as a result of even higher policy decision. And, while many health IT systems are efficient and welcomed by their users, and are essential to modern healthcare, this is not the case for all. Unfortunately, some systems cause user frustration and result in inefficiency in use, and a few are known to have inconvenienced patients or even caused harm, including the occasional death. This book seeks to answer the need for better understanding of the importance of robust evidence to support health IT and to optimize investment in it; to give insight into health IT evidence and evaluation as its primary source; and to promote health informatics as an underpinning science demonstrating the same ethical rigour and proof of net benefit as is expected of other applied health technologies. The book is divided into three parts: the context and importance of evidence-based health informatics; methodological considerations of health IT evaluation as the source of evidence; and ensuring the relevance and application of evidence. A number of cross cutting themes emerge in each of these sections. This book seeks to inform the reader on the wide range of knowledge available, and the appropriateness of its use according to the circumstances. It is aimed at a wide readership and will be of interest to health policymakers, clinicians, health informaticians, the academic health informatics community, members of patient and policy organisations, and members of the vendor industry.

On topics from genetic engineering and mad cow disease to vaccination and climate change, this Handbook draws on the insights of 57 leading science of science communication scholars who explore what social scientists know about how citizens come to understand and act on what is known by science.

The Politics of Evidence Based Policymaking identifies how to work with policymakers to maximize the use of scientific evidence. Policymakers cannot consider all evidence relevant to policy problems. They use two shortcuts: ‘rational’ ways to gather enough evidence, and ‘irrational’ decision-making, drawing on emotions, beliefs, and habits. Most scientific studies focus on the former. They identify uncertainty when policymakers have incomplete evidence, and try to solve it by improving the supply of information. They do not respond to ambiguity, or the potential for policymakers to understand problems in very different ways. A good strategy requires advocates to be persuasive: forming coalitions with like-minded actors, and accompanying evidence with simple stories to exploit the emotional or ideological biases of policymakers.

Ethical issues associated with public health and health policy--related, for example, to pandemic plans and vaccination policies (c.f. SARS or pandemic influenza), preventive measures like screening (e.g. for breast cancer or dementia) or health information campaigns, social inequalities or health care rationing--are increasing in worldwide importance. Evidence-based information for valid benefit-harm assessment is often rare and hard to get for participants in public health interventions. Program implementation often disregards requirements of fair decision-making processes (like public participation, transparency, etc.). Originating from an international conference (based on a call for abstracts and external review), this volume contains contributions from a group of experts from multiple disciplines and countries. It covers (i) conceptual foundations of public health ethics, (ii) methodological approaches and (iii) normative analyses of specific issues and cases. Bridging theoretical foundations with practical applications, this volume provides a valuable resource for researchers, practitioners and students concerned with public health practice and policy.

For most of political science's history, discussions about professional ethics had nothing to do with human subjects. Professional ethics involved integrity in the classroom, fair tenure and promotion rule, and the careful avoidance of plagiarism. As most research was observational, there was little need for attention to how scholarly activities might directly affect the subjects of our work. Times have changed. The dramatic growth in the use of experiments in social science, especially overseas, is generating unexpected ethical controversies. The purpose of this volume is to identify, debate, and propose practical solutions to the most critical of these new ethical issues. A leading team of internationally distinguished political science scholars presents the first examination of the practical and ethical challenges of research with human subjects in social science and policy studies. Part 1 examines contextual challenges provided by experiments conducted overseas - questions of culture, religion, security, and poverty. Part 2 examines questions of legal constraints on research, focusing on questions of foreign review of international experiments. Part 3 tackles the critical issues in field experiments, including deception and consent, impact on elections and careers, the boundaries of the public officials' exemption, and the use of partner organizations to avoid Institutional Review Body (IRB) review. Part 4 considers strategies for the future, including training and education, IRB reform, institutional changes, and norm development.