This book pushes the boundaries in the way we approach people with profound intellectual and multiple disabilities, and in how we work with them in education and research. While it is grounded in diverse theoretical frameworks and disciplines, the book coheres around a commitment to seeing people with profound intellectual and multiple disabilities as equal citizens who belong in our classrooms, research projects and community lives. Each section covers policy contexts, key ideas and recent research. Featuring contributions from around the world, the book incorporates established and new voices, different disciplines and experiences. Additionally, it includes pieces from family members of people with profound intellectual and multiple disabilities. Divided into three parts, the book explores three main topics: Belonging in education Belonging in research Belonging in communities Belonging for People with Profound Intellectual and Multiple Disabilities is an invaluable resource for scholars, professionals and postgraduate research students with an interest in children or adults with profound intellectual and multiple disabilities.

Written for parents, carers and professionals who have responsibilities for people with profound intellectual and multiple disabilities, Listen to Me is a practical guide to coping with the complex problems of someone with this level of disability, asserting their rights, interpreting their needs successfully, and maintaining effective contact with all the professionals and organisations who deal with them. Using examples from the author's experience with her own daughter, each chapter deals with communicating the person's rights and needs in particular situations. It is shown how it is possible to enrich the individual's experience and ensure that others value him or her as a distinct individual with a right to a meaningful life.

This book examines belonging as a key protective factor for enhancing resilience for individuals with intellectual and developmental disabilities and their families. It focuses on understanding intellectual and developmental disabilities and resilience from systemic and social-ecological perspectives, emphasizing the roles of professionals, families, and communities in combating long-standing segregation and health disparities experienced by individuals and families. The volume explores the dimensions of belonging across diverse professional fields using a person-centered approach that acknowledges the significant lifelong role of family members and emphasizes reflective practice for professionals. Chapters present research and innovative strategies to facilitate belonging when working alongside individuals and families. Key areas of coverage include: Family-professional partnerships in working with individuals with intellectual and developmental disabilities across lifespan and community contexts. Spirituality, mental health, and identity in persons with intellectual and developmental disabilities. Research ethics and design in working with individuals with intellectual and developmental disabilities. The diverse needs, desires, and preferences of individuals with intellectual and developmental disabilities. The importance of individualized planning and approaches in fostering belonging for individuals with intellectual and developmental disabilities. Belonging and Resilience in Individuals with Developmental Disabilities is a valuable resource for researchers, professors, and graduate students as well as clinicians, therapists, and related professionals in developmental psychology, family studies, public health, and social work as well as related disciplines, including education policy and politics, behavioral health, and psychiatry.

This book explores what happens to people with profound intellectual and multiple disabilities (PIMD) when they reach adulthood. It provides an examination of various terms and definitions in use and a critical exploration of current UK policies. The author brings a wealth of many years' experience as a family carer, independent consultant and trainer to demonstrate the significant changes that a person-centred, specialised therapeutic and incremental approach can make to an individual's life. Advances in medical science mean more than ever, people with (PIMD) are growing into adulthood. What is this experience like for an adult who needs support in all aspects of their life? How do we include them in planning support when their intellectual disability means they cannot tell us first hand, what they want or need? Too often this group are overlooked or considered as an afterthought in policy and planning. Notions of independence, employment and mainstream inclusion are all problematic policy ideas for this group of people. Within one-size-fits-all service planning this focus means there is less capacity to meet their life-long specialist, complex and individualised needs. Understanding Profound and Intellectual and Multiple Disabilities in Adults is essential reading for anyone who is involved in the lives of adults with profound intellectual and multiple disabilities, whether as a researcher, student, carer or policy-maker. atic policy ideas for this group of people. Within one-size-fits-all service planning this focus means there is less capacity to meet their life-long specialist, complex and individualised needs. Understanding Profound and Intellectual and Multiple Disabilities in Adults is essential reading for anyone who is involved in the lives of adults with profound intellectual and multiple disabilities, whether as a researcher, student, carer or policy-maker.

Children and adults with profound and multiple learningdisabilities (PMLD) are among the most marginalised people insociety. They have some of the highest support needs and are mostreliant on services. This accessible text presents and promotescurrent best practice regarding interventions to meet the complexhealth needs of a person with profound & multiple learningdisabilities. Practical in focus, this text provides evidence-basedguidance on meeting the complex needs of a person with PMLD. The text presents a range of complex health needs that apractitioner may face, such as communication, nutrition, epilepsy,vision and mobility. Each practice-focused chapter provides cleardefinitions of the condition, with current evidence-basedbest-practice supporting the intervention. Written by a team of professionals who have wide experience andinterest in this subject area, this text will be invaluable for allthose working with, and caring for those with profound and multiplelearning disabilities.

Profound intellectual and multiple disabilities (PIMD) are those intellectual disabilities which are combined with common medical complications, profound physical disabilities and sensory impairments. They result in individuals becoming completely dependent on others. Congenital syndromes are common in people with profound intellectual disabilities. These people are unable to live self-sufficiently and require constant monitoring and assistance with their self-care. They normally have weak capability to communicate their needs and also have physical limitations. Multiple disabilities refers to a condition in which an individual is suffering from a variety of disabilities such as someone who has both a motor disability and a sensory disability. This book provides significant information on profound intellectual and multiple disabilities, as well as the theme of inclusion. Those with an interest in this topic would find this book helpful.

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