Weaving together family history, genetic discovery, and scenes from her life, Ami McKay tells the compelling, true-science story of her own family's unsettling legacy of hereditary cancer while exploring the challenges that come from carrying the mutation that not only killed many people you loved, but might also kill you. The story of Ami McKay's connection to a genetic disorder called Lynch syndrome begins over seventy years before she was born and long before scientists discovered DNA. In 1895 her great-great aunt, Pauline Gross, a seamstress in Ann Arbor, Michigan, confided to a pathology professor at the local university that she expected to die young, like so many others in her family. Rather than dismiss her fears, the pathologist chose to enlist Pauline in the careful tracking of those in her family tree who had died of cancer. Pauline's premonition proved true--she died at 46--but because of her efforts, her family (who the pathologist dubbed 'Family G') would become the longest and most detailed cancer genealogy ever studied in the world. A century after Pauline's confession, researchers would identify the genetic mutation responsible for the family's woes. Now known as Lynch syndrome, the genetic condition predisposes its carriers to several types of cancer, including colorectal, endometrial, ovarian and pancreatic. In 2001, as a young mother with two sons and a keen interest in survival, Ami McKay was among the first to be tested for Lynch syndrome. She had a feeling she'd test positive: her mother's side of the family was riddled with early deaths and her own mother was being treated for the disease. When the test proved her fears true, she began living in "an unsettling state between wellness and cancer," and she's been there ever since. Intimate, candid, and probing, her genetic memoir tells a fascinating story, teasing out the many ways to live with the hand you are dealt.

Hayley Okines is like no other 13-year-old schoolgirl. In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley's excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 - the average life expectancy for a child with progeria - Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...

Sent Before My Time is an exploration of the workings of a neo natal intensive care unit from a child psychotherapist's point of view. It examines the relationships between the babies, the parents and the staff.

NATIONAL BESTSELLER WINNER OF THE ROBBIE ROBERTSON DARTMOUTH BOOK AWARD and the EVELYN RICHARDSON NON-FICTION AWARD Previously published as Daughter of Family G Weaving together touching scenes from her family history and her own life, Ami McKay's intimate and captivating memoir captures what it means to live fully even when you know your life may be cut short. In 1895, Ami McKay's great-great aunt, a dressmaker named Pauline Gross, confided to a medical professor that she expected to die young, like many in her family before her. With her help, that doctor launched a family study that eventually led to the identification of the genetic mutation now known as Lynch syndrome, which predisposes its carriers to several types of cancer. In 2001, Ami was among the first to be tested for the syndrome. And now she's written the captivating story of how she, like her mother before her, learned to carry on with joy, with hope, and with a bold hunger for life in the face of an uncertain future. Ami writes of her childhood, "I listened to the women in my family tell stories of the past . . . sitting around the kitchen table with my mother, sometimes laughing until they cried, sometimes sobbing through words of grief. They spoke of relatives who lived before I was born—people who came from nothing, who faced great hardship, who died too young. The women in those tales stared down death, looked after the sick, and conversed with fate. They spread the truth through story, even when others didn't wish to hear it. This is how I learned that stories have power—to make sense of the world, to give voice to dreams, to nurture hope and banish fear."

The rich and complex saga of a wealthy Russian family at the turn of the century.Mr. Tucci performs something of a major tour de force. After a brilliant first chapter which pinpoints with deft if uncharitable wit its cast of characters, the book unfolds with almost Proustian involution. The vanished world of Tucci's family lives again in this book, intact in its baroque opulence.-New York Times Book Review

Weaving together family history, genetic discovery, and scenes from her life, Ami McKay tells the compelling, true-science story of her own family's unsettling legacy of hereditary cancer while exploring the challenges that come from carrying the mutation that not only killed many people you loved, but might also kill you. The story of Ami McKay's connection to a genetic disorder called Lynch syndrome begins over seventy years before she was born and long before scientists discovered DNA. In 1895 her great-great aunt, Pauline Gross, a seamstress in Ann Arbor, Michigan, confided to a pathology professor at the local university that she expected to die young, like so many others in her family. Rather than dismiss her fears, the pathologist chose to enlist Pauline in the careful tracking of those in her family tree who had died of cancer. Pauline's premonition proved true--she died at 46--but because of her efforts, her family (who the pathologist dubbed 'Family G') would become the longest and most detailed cancer genealogy ever studied in the world. A century after Pauline's confession, researchers would identify the genetic mutation responsible for the family's woes. Now known as Lynch syndrome, the genetic condition predisposes its carriers to several types of cancer, including colorectal, endometrial, ovarian and pancreatic. In 2001, as a young mother with two sons and a keen interest in survival, Ami McKay was among the first to be tested for Lynch syndrome. She had a feeling she'd test positive: her mother's side of the family was riddled with early deaths and her own mother was being treated for the disease. When the test proved her fears true, she began living in "an unsettling state between wellness and cancer," and she's been there ever since. Intimate, candid, and probing, her genetic memoir tells a fascinating story, teasing out the many ways to live with the hand you are dealt.

From a master of modern American letters comes an enthralling collection of brilliant short fiction about people who, as E. L. Doctorow notes in his Preface, are somehow “distinct from their surroundings—people in some sort of contest with the prevailing world.” Containing six unforgettable stories that have never appeared in book form, and a selection of previous classics, All the Time in the World is resonant with the mystery, tension, and moral investigation that distinguish the fiction of E. L. Doctorow.