Advances of health care transition for patients with childhood-onset chronic diseases: International perspectives, volume II

Advances of health care transition for patients with childhood-onset chronic diseases: International perspectives, volume II
Title Advances of health care transition for patients with childhood-onset chronic diseases: International perspectives, volume II PDF eBook
Author Yuko Ishizaki
Publisher Frontiers Media SA
Pages 158
Release 2023-03-16
Genre Medical
ISBN 2832517692

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Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions

Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions
Title Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions PDF eBook
Author Cecily L. Betz
Publisher Springer Nature
Pages 344
Release 2019-11-30
Genre Medical
ISBN 3030233847

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This book offers essential information on interventions and actions that enable and promote transition experiences for adolescents and young adults. It provides guidance on appropriate strategies that bring together these groups and caregivers in the context of transition preparation, and those which optimize adolescents’ and young adults’ ability to self-manage their healthcare. The health care transition for adolescents and young adults has gained more attention given the improved survival rates, including for those with long-term conditions. It is now estimated that more than 90% of children diagnosed with a long-term condition will survive into adulthood. The significant change in survival requires concomitant services to facilitate adolescents’ and young adults’ successful transition to adult health care, therefore providers need education, knowledge and skills to support healthcare transition services. A recent US national survey demonstrated only 10% of parents/caregivers reported that their children received transition preparation services. This book is targeted at nurses and pediatric and adult health care providers of different disciplines seeking guidance on which interventions are available, how they can be used, advantages and challenges, and how best to promote a seamless transition for all adolescents and young adults with long-term conditions. It provides several examples of transition programmes and initiatives worldwide. There is an increasing focus on how nurses can support transition but little guidance on what is effective and what has been tried. This book will fill a gap by addressing all of these issues outlined above and by providing worked examples from leading nurse researchers and academics worldwide.

Care of Adults with Chronic Childhood Conditions

Care of Adults with Chronic Childhood Conditions
Title Care of Adults with Chronic Childhood Conditions PDF eBook
Author Alice A. Kuo
Publisher Springer Nature
Pages 825
Release
Genre
ISBN 3031542819

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Health Care Transition

Health Care Transition
Title Health Care Transition PDF eBook
Author Albert C. Hergenroeder
Publisher Springer
Pages 386
Release 2018-05-03
Genre Medical
ISBN 3319728687

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This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.

Handbook of Quality of Life for Individuals with Autism Spectrum Disorder

Handbook of Quality of Life for Individuals with Autism Spectrum Disorder
Title Handbook of Quality of Life for Individuals with Autism Spectrum Disorder PDF eBook
Author Justin B. Leaf
Publisher Springer Nature
Pages 477
Release 2022-06-01
Genre Psychology
ISBN 3030985075

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This handbook offers a comprehensive examination of wide-ranging issues relevant to adults diagnosed with autism spectrum disorder. Coverage includes a detailed review of such issues as psychiatric comorbidity, family relationships, education, living in different settings (e.g., group homes, community), meaningful and effective interventions, functional goals (e.g., social, language, vocational, and adaptive behaviors), and curriculum. In addition the book provides unique perspectives of parents as well as individuals diagnosed with autism spectrum disorder who have reached adulthood. Key areas of coverage include: Transitioning adults diagnosed with autism spectrum disorder from educational settings to vocational settings. Strategies that can help create independence for adults diagnosed with autism spectrum disorder. Effective approaches to address issues relating to sexuality for adults diagnosed with autism spectrum disorder. The effectiveness of early intensive behavioral intervention to help adults diagnosed with autism spectrum disorder. Handbook of Quality of Life for Individuals with Autism Spectrum Disorder is an essential reference for researchers, professors, and graduate students as well as clinicians, therapists, and related professionals in clinical child and school psychology, social work, behavioral therapy and related disciplines, including clinical medicine, clinical nursing, counseling, speech and language pathology, and special education.

Nursing Care of the Pediatric Neurosurgery Patient

Nursing Care of the Pediatric Neurosurgery Patient
Title Nursing Care of the Pediatric Neurosurgery Patient PDF eBook
Author Cathy C. Cartwright
Publisher Springer
Pages 615
Release 2017-04-28
Genre Medical
ISBN 3319493191

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xxxThis updated third edition is a detailed reference for nurses and other health care providers who care for children with neurosurgical conditions. The explanations of pathophysiology, anatomy, neurodiagnostic imaging, and treatment options for each neurosurgical diagnosis will help to clarify the rationale behind the nursing care. Descriptions of presenting symptoms, history and findings on neurological examination will help nurses understand the neurological disorder and identify problems. New chapters have been added on skull and scalp anomalies, pediatric concussion, abuse head trauma and on neuroimaging. Each chapter includes case studies, impact on families, patient and family education, and practice pearls. Staff and student nurses working in clinics, critical care units, pediatric units, operating rooms, post-anesthesia care units, emergency departments, and radiology departments will benefit from the information presented. Although this book is written for nurses, child life therapists, physical and occupational therapists, medical students and neurosurgery residents will also find it helpful. Parents of children with neurosurgical disorders will also find it a useful resource in understanding their child’s condition. Cathy C. Cartwright and Donna C. Wallace have been awarded third place in the 2017 American Journal of Nursing Book of the Year Awards in CHILD HEALTH category.

The Future of the Public's Health in the 21st Century

The Future of the Public's Health in the 21st Century
Title The Future of the Public's Health in the 21st Century PDF eBook
Author Institute of Medicine
Publisher National Academies Press
Pages 536
Release 2003-02-01
Genre Medical
ISBN 0309133181

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The anthrax incidents following the 9/11 terrorist attacks put the spotlight on the nation's public health agencies, placing it under an unprecedented scrutiny that added new dimensions to the complex issues considered in this report. The Future of the Public's Health in the 21st Century reaffirms the vision of Healthy People 2010, and outlines a systems approach to assuring the nation's health in practice, research, and policy. This approach focuses on joining the unique resources and perspectives of diverse sectors and entities and challenges these groups to work in a concerted, strategic way to promote and protect the public's health. Focusing on diverse partnerships as the framework for public health, the book discusses: The need for a shift from an individual to a population-based approach in practice, research, policy, and community engagement. The status of the governmental public health infrastructure and what needs to be improved, including its interface with the health care delivery system. The roles nongovernment actors, such as academia, business, local communities and the media can play in creating a healthy nation. Providing an accessible analysis, this book will be important to public health policy-makers and practitioners, business and community leaders, health advocates, educators and journalists.