A qualitative study examining coping and support systems used by parents of children with autism

A qualitative study examining coping and support systems used by parents of children with autism
Title A qualitative study examining coping and support systems used by parents of children with autism PDF eBook
Author Matilda Andersson
Publisher
Pages
Release 2006
Genre
ISBN

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A Community Engaged Approach to Examining Quality of Life and Service Navigation in Korean Families of Autistic Children in BC, Canada

A Community Engaged Approach to Examining Quality of Life and Service Navigation in Korean Families of Autistic Children in BC, Canada
Title A Community Engaged Approach to Examining Quality of Life and Service Navigation in Korean Families of Autistic Children in BC, Canada PDF eBook
Author Vanessa Fong
Publisher
Pages 0
Release 2022
Genre
ISBN

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Few studies to date have explored the experiences of racialized and ethno-cultural families raising autistic children in multicultural contexts such as Canada. Research conducted in the US and Canada have identified strengths and difficulties related to family functioning and coping strategies used by immigrant parents. Additionally, this research has also identified barriers and facilitators to accessing diagnostic and other autism services across the lifespan. However, the majority of these studies have broadly categorized immigrant populations, potentially masking important differences within pan-ethnic populations. In Canada, and British Columbia (BC) specifically, one of the largest and fastest growing visible minority groups are Koreans (Statistics Canada, 2017). Yet despite this, no studies to date have examined the experiences and perceptions of Korean immigrant parents of autistic children living in BC. This gap in the research has become increasingly urgent given the growing prevalence rates of autism and the highly complex service system in Canada, which varies considerably across provinces. This research utilized a community engaged approach and qualitative methodology to explore quality of life, service navigation, and coping strategies among 25 Korean parents of autistic children (5-33 years) living in BC. This study addressed three aims. First, parents' conceptualizations and descriptions of family quality of life (FQOL) were explored. Analyses revealed three themes that were central to their definitions of FQOL: family cohesiveness, value orientation, and acceptance from society. Second, parents' perceptions of barriers and facilitators to accessing autism services were examined. Barriers at the system (e.g., ineffective school policies), provider (e.g., negative attitudes, lack of service navigation support), and family level (e.g., stigma) were identified. Facilitators included family-centered care (system level), culturally competent and bilingual professionals (provider level), and connections to cultural community organizations (family level). Third, a subset of caregivers (n=12) representing both high and low levels of FQOL shared their coping strategies on how they came to terms with their child's diagnosis and manage stress. The results are discussed linking previous research to current findings and considered in terms of practice and policy implications with future areas of research identified.

The Coping Strategies of Families who Have More Than One Child with Autism

The Coping Strategies of Families who Have More Than One Child with Autism
Title The Coping Strategies of Families who Have More Than One Child with Autism PDF eBook
Author Imogen Waterson
Publisher
Pages
Release 2012
Genre
ISBN

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How do families with more than one child with autism manage to cope and do they risk family disintegration or demonstrate resilience? Although there is extensive literature on coping with children with disabilities, no previous study has examined the effect of living with two or more children with autism. Eleven families including parents, siblings, and verbal children with autism, (45 individuals) were interviewed to ascertain their coping strategies. Using Grounded Theory, the semi-structured interview typescripts were analysed, and a theory emerged that all families cope, but they go through different periods of perilous coping and buoyant coping. The various factors which lead to each type of coping are demonstrated, and discussed. Practical suggestions to improve coping are given by the families. Their message to the non autistic world was that they do not want to be pitied. The results showed a remarkable degree of resilience in all the families. Family and extended family were the most significant source of support. Perilous coping was associated with a number of intervening factors. The families showed real warmth and love towards the affected children and in spite of concerns about the future, the non affected siblings were confident they would look after their disabled siblings when the parents were no longer able to do so. Children with autism had a fascinating range of perceptions about autism.

A Comprehensive Book on Autism Spectrum Disorders

A Comprehensive Book on Autism Spectrum Disorders
Title A Comprehensive Book on Autism Spectrum Disorders PDF eBook
Author Mohammad-Reza Mohammadi
Publisher BoD – Books on Demand
Pages 491
Release 2011-09-15
Genre Medical
ISBN 9533074949

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The aim of the book is to serve for clinical, practical, basic and scholarly practices. In twentyfive chapters it covers the most important topics related to Autism Spectrum Disorders in the efficient way and aims to be useful for health professionals in training or clinicians seeking an update. Different people with autism can have very different symptoms. Autism is considered to be a "spectrum" disorder, a group of disorders with similar features. Some people may experience merely mild disturbances, while the others have very serious symptoms. This book is aimed to be used as a textbook for child and adolescent psychiatry fellowship training and will serve as a reference for practicing psychologists, child and adolescent psychiatrists, general psychiatrists, pediatricians, child neurologists, nurses, social workers and family physicians. A free access to the full-text electronic version of the book via Intech reading platform at http://www.intechweb.org is a great bonus.

Parenting Matters

Parenting Matters
Title Parenting Matters PDF eBook
Author National Academies of Sciences, Engineering, and Medicine
Publisher National Academies Press
Pages 525
Release 2016-11-21
Genre Social Science
ISBN 0309388570

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Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Understanding the Utilization of Parent Support Groups of Parents with Children Diagnosed with Autism Or Other Developmental Disabilities

Understanding the Utilization of Parent Support Groups of Parents with Children Diagnosed with Autism Or Other Developmental Disabilities
Title Understanding the Utilization of Parent Support Groups of Parents with Children Diagnosed with Autism Or Other Developmental Disabilities PDF eBook
Author Naicari Mata
Publisher
Pages 38
Release 2017
Genre
ISBN

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Purpose: To explore the utilization of parent support groups for parents with children diagnosed with autism or other developmental disabilities. The research was a qualitative study exploring why individuals join parent support groups and their expectations of the group. Methods: The researchers utilized convenient sampling, as all participants were recruited from the Family Focus Resource Center offices located in Northridge and Santa Clarita. In-depth face-to-face interviews were conducted with 10 participants that attended a parent support group. The interview consisted of a total of 10 questions that pertained to the following areas: (1) motives and expectations and (2) demographics. Results: The results were consistent with previous research indicating that parents of children diagnosed with autism or other developmental disabilities join support groups for psychological support, tools to connect with their child, and educational support. There were six primary themes identified for all the parents in the study. Discussion: The findings in this study were congruent with the literature on the benefits of parents receiving social support and education, as well as positive changes within relationships in the family system.

Stress and Coping in Autism

Stress and Coping in Autism
Title Stress and Coping in Autism PDF eBook
Author M. Grace Baron
Publisher Oxford University Press, USA
Pages 484
Release 2006
Genre Medical
ISBN 9780195182262

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