Sylvia and her husband, Brian, were enjoying an unconditionally loving relationship when suddenly it all changed and Sylvia found herself investigating young-onset Alzheimers disease. A nursing and care home management background did not prepare Sylvia for the journey ahead. The Rocky Road of 24/7 Care explains the journey she and her husband embarked on when the plan they had to do the journey totally at home changed and nursing home care became the best option. Sylvia has drawn on her inner spiritual strength plus coaching mechanisms to work at being able to choose peace during the most challenging moments of this new journey as a carer. Sylvias story takes you from admission day to Brians care in the latter stages of his condition.

Sylvia and her husband, Brian, were enjoying an unconditionally loving relationship when suddenly, it all changed, and Sylvia found herself investigating young onset Alzheimers disease. A nursing and care home management background did not prepare Sylvia for the journey ahead. The Rocky Road of Naughty Neurons explains the journey she and her husband took when he was diagnosed with the condition. The blessings on their journey have been many, as they have been determined to do their very best to make each day a positive one with lots of laughter. Sylvia has drawn on her inner spiritual strength plus coaching mechanisms to work at being able to choose peace during the most challenging moments. Sylvias story takes you from prediagnosis to Brian being in the start of full-time care and includes many tips for carers.

Sylvia, in her third book, now shares the last stages of the Alzheimer's journey of her husband with you and her first year of moving on into a new life without his physical presence. It is interspersed with information to help carers with their own journey of emotional grief and loss. You will read how Sylvia lived her grieving journey with a determination to grieve positively. Everyone's grief journey is unique but there are some powerful tips to help readers in the day to day experience of grieving there loss.

Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients' and consumers' roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume.