The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice. The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies—scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism.

A philosophical challenge to the ableist conflation of disability and pain More than 2,000 years ago, Aristotle said: “let there be a law that no deformed child shall live.” This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy. Joel Michael Reynolds argues that this history demonstrates a fundamental mischaracterization of the meaning of disability, thanks to the conflation of lived experiences of disability with those of pain and suffering. Building on decades of activism and scholarship in the field, Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision of what an anti-ableist moral future requires. The Life Worth Living is the first sustained examination of disability through the lens of the history of moral philosophy and phenomenology, and it demonstrates how lived experiences of disability demand a far richer account of human flourishing, embodiment, community, and politics in philosophical inquiry and beyond.

This book reconceives disability as a set of social relations and practices, as experienced embodiment, and as an emancipatory movement, as well as a biomedical phenomenon. The author looks at not only the biomedical understanding of impairment, but also its cultural representations and social organization.

Disability Justice in Public Health Emergencies is the first book to highlight contributions from critical disability scholarship to the fields of public health ethics and disaster ethics. It takes up such contributions with the aim of charting a path forward for clinicians, bioethicists, public health experts, and anyone involved in emergency planning to better care for disabled people—and thereby for all people—in the future. Across 11 chapters, the contributors detail how existing public health emergency responses have failed and still fail to address the multi-faceted needs of disabled people. They analyze complications in the context of epidemic and pandemic disease and emphasize that vulnerabilities imposed upon disabled people track and foster patterns of racial and class domination. The central claim of the volume is that the ethical and political insights of disability theory and activism provide key resources for equitable disaster planning for all. The volume builds upon the existing efforts of disability communities to articulate emergency planning priorities and response measures that take into account the large body of qualitative and quantitative research on disabled people’s health, needs, and experiences. It is only by listening to disabled people’s voices that we will all fare better in future public health emergencies. The book will be of interest to scholars and graduate students working in bioethics, disability studies, public health policy, medical sociology, and the medical humanities.

This book reconceives disability as a set of social relations and practices, as experienced embodiment, and as an emancipatory movement, as well as a biomedical phenomenon. The author brings new attention to complex ethical questions surrounding disability, looking at not only the biomedical understanding of impairment, but also its cultural representations and social organization.

The 2024 Backhouse Lecture God’s ways, not our ways: A dissident Quaker response to disability was delivered by Jackie Leach Scully on Monday July 8th 2024 in Adelaide. Disability has shaped Jackie’s family, career, personal and professional life, and her engagement with faith and spirituality. Drawing on her personal and professional experience, she looks at traditional and contemporary theological engagement with disability. She uses Quaker testimony to explore how Friends are called to respond to disability and impairment and shares some “dissident thinking” about disability with Australian Friends, and others, to help build a world more inclusive of all kinds of difference and diversity.

The Bloomsbury Guide to Philosophy of Disability is a revolutionary collection encompassing the most innovative and insurgent work in philosophy of disability. Edited and anthologized by disabled philosopher Shelley Lynn Tremain, this book challenges how disability has historically been represented and understood in philosophy: it critically undermines the detrimental assumptions that various subfields of philosophy produce; resists the institutionalized ableism of academia to which these assumptions contribute; and boldly articulates new anti-ableist, anti-sexist, anti-racist, queer, anti-capitalist, anti-carceral, and decolonial insights and perspectives that counter these assumptions. This rebellious and groundbreaking book's chapters–most of which have been written by disabled philosophers–are wide-ranging in scope and invite a broad readership. The chapters underscore the eugenic impetus at the heart of bioethics; talk back to the whiteness of work on philosophy and disability with which philosophy of disability is often conflated; and elaborate phenomenological, poststructuralist, and materialist approaches to a variety of phenomena. Topics addressed in the book include: ableism and speciesism; disability, race, and algorithms; race, disability, and reproductive technologies; disability and music; disabled and trans identities and emotions; the apparatus of addiction; and disability, race, and risk. With cutting-edge analyses and engaging prose, the authors of this guide contest the assumptions of Western disability studies through the lens of African philosophy of disability and the developing framework of crip Filipino philosophy; articulate the political and conceptual limits of common constructions of inclusion and accessibility; and foreground the practices of epistemic injustice that neurominoritized people routinely confront in philosophy and society more broadly. A crucial guide to oppositional thinking from an international, intersectional, and inclusive collection of philosophers, this book will advance the emerging field of philosophy of disability and serve as an antidote to the historical exclusion of disabled philosophers from the discipline and profession of philosophy. The Bloomsbury Guide to Philosophy of Disability is essential reading for faculty and students in philosophy, disability studies, political theory, Africana studies, Latinx studies, women's and gender studies, LGBTQ studies, and cultural studies, as well as activists, cultural workers, policymakers, and everyone else concerned with matters of social justice. Description of the book's cover: The book's title appears on two lines across the top of the cover which is a salmon tone. The names of the editor and the author of the foreword appear in white letters at the bottom of the book. The publisher's name is printed along the right side in white letters. At the centre, a vertical white rectangle is the background for a sculpture by fibre artist Judith Scott. The sculpture combines layers of shiny yarn in various colours including orange, pink, brown, and rust woven vertically on a large cylinder and horizontally around a smaller cylinder, as well as blue yarn woven around a protruding piece at the bottom of the sculpture. The sculpture seems to represent a body and head of a being sitting down, a being with one appendage, a fat person, or a little person.