Raising a Rare Girl

Raising a Rare Girl
Title Raising a Rare Girl PDF eBook
Author Heather Lanier
Publisher Penguin
Pages 321
Release 2020-07-07
Genre Family & Relationships
ISBN 0525559639

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A New York Times Book Review Editors' Choice Kate Bowler's The Everything Happens Book Club Pick! Award-winning writer Heather Lanier's memoir about raising a child with a rare syndrome, defying the tyranny of normal, and embracing parenthood as a spiritual practice that breaks us open in the best of ways. Like many women of her generation, Heather Lanier did everything by the book when she was expecting her first child. She ate organic foods, recited affirmations, and drew up a birth plan for an unmedicated labor in the hopes that she could create a SuperBaby, an ultra-healthy human destined for a high-achieving future. But her daughter Fiona challenged all of Lanier's preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. Not only had Lanier failed to produce a SuperBaby, she now fiercely loved a child that the world would sometimes reject. The diagnosis obliterated Lanier's perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability, God, and love. With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app, and a whole lot of pop and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. They also confront society's attitudes toward disability and the often cruel assumptions made about Fiona's worth. Lanier realizes the biggest question is not, Will my daughter walk or talk? but, How can I best love my girl, just as she is? Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.

This Boy We Made

This Boy We Made
Title This Boy We Made PDF eBook
Author Taylor Harris
Publisher Catapult
Pages 273
Release 2023-01-17
Genre Biography & Autobiography
ISBN 1646221621

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A Black mother bumps up against the limits of everything she thought she believed—about science and medicine, about motherhood, and about her faith—in search of the truth about her son. "The memoir dedicates important space to the numbing bureaucracy that often accompanies medical visits, particularly as seen through the eyes of a Black woman in the South. Having moved often within White neighborhoods and educational institutions around her home in Charlottesville, Harris is unflinching about her periodic unease in those quarters. . . Harris also brings humor to bear in moments of great adversity."—Karen Iris Tucker, Washington Post One morning, Tophs, Taylor Harris’s round-cheeked, lively twenty-two-month-old, wakes up listless, only lifting his head to gulp down water. She rushes Tophs to the doctor, ignoring the part of herself, trained by years of therapy for generalized anxiety disorder, that tries to whisper that she’s overreacting. But at the hospital, her maternal instincts are confirmed: something is wrong with her boy, and Taylor’s life will never be the same. With every question the doctors answer about Tophs’s increasingly troubling symptoms, more arise, and Taylor dives into the search for a diagnosis. She spends countless hours trying to navigate health and education systems that can be hostile to Black mothers and children; at night she googles, prays, and interrogates her every action. Some days, her sweet, charismatic boy seems just fine; others, he struggles to answer simple questions. A long-awaited appointment with a geneticist ultimately reveals nothing about what’s causing Tophs’s drops in blood sugar, his processing delays—but it does reveal something unexpected about Taylor’s own health. What if her son’s challenges have saved her life? This Boy We Made is a stirring and radiantly written examination of the bond between mother and child, full of hard-won insights about fighting for and finding meaning when nothing goes as expected.

No Filter

No Filter
Title No Filter PDF eBook
Author Paulina Porizkova
Publisher Penguin
Pages 241
Release 2022-11-15
Genre Biography & Autobiography
ISBN 0593493524

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Writer and former model Paulina Porizkova pens a series of intimate, introspective, and enlightening essays about the complexities of womanhood at every age, pulling back the glossy magazine cover and writing from the heart. Born in Cold War Czechoslovakia, Paulina Porizkova rose to prominence as a model, appearing on her first Sports Illustrated Swimsuit Issue cover in 1984. As the face of Estée Lauder in 1989, she was one of the highest-paid models in the world. When she was cast in the music video for the song “Drive” by The Cars, it was love at first sight for her and frontman Ric Ocasek. He was forty at the time, and Porizkova was nineteen. The decades to come would bring marriage, motherhood, a budding writing career; and later sadness, loneliness, isolation, and eventually divorce. Following her ex-husband’s death—and the revelation of a deep betrayal—Porizkova stunned fans with her fierce vulnerability and disarming honesty as she let the whole world share in her experience of being a woman who must start over. This is a wise and compelling exploration of heartbreak, grief, beauty, aging, relationships, re-invention and finding your purpose. In these essays, Porizkova bares her soul and shares the lessons she’s learned—often the hard way. After a lifetime of being looked at, she is ready to be heard.

Jackie's Girl

Jackie's Girl
Title Jackie's Girl PDF eBook
Author Kathy McKeon
Publisher Simon and Schuster
Pages 320
Release 2017-05-09
Genre Biography & Autobiography
ISBN 1501158945

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A "coming-of-age memoir by a young woman who spent thirteen years as Jackie Kennedy's personal assistant and occasional nanny--and the lessons about life and love she learned from the glamorous [former] first lady"--Amazon.com.

Achtung Baby

Achtung Baby
Title Achtung Baby PDF eBook
Author Sara Zaske
Publisher Picador
Pages 256
Release 2018-01-02
Genre Family & Relationships
ISBN 1250160189

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An Entertaining, Enlightening Look at the Art of Raising Self-Reliant, Independent Children Based on One American Mom’s Experiences in Germany An NPR "Staff Pick" and One of the NPR Book Concierge's"Best Books of the Year" When Sara Zaske moved from Oregon to Berlin with her husband and toddler, she knew the transition would be challenging, especially when she became pregnant with her second child. She was surprised to discover that German parents give their children a great deal of freedom—much more than Americans. In Berlin, kids walk to school by themselves, ride the subway alone, cut food with sharp knives, and even play with fire. German parents did not share her fears, and their children were thriving. Was she doing the opposite of what she intended, which was to raise capable children? Why was parenting culture so different in the States? Through her own family’s often funny experiences as well as interviews with other parents, teachers, and experts, Zaske shares the many unexpected parenting lessons she learned from living in Germany. Achtung Baby reveals that today's Germans know something that American parents don't (or have perhaps forgotten) about raising kids with “selbstandigkeit” (self-reliance), and provides practical examples American parents can use to give their own children the freedom they need to grow into responsible, independent adults.

Just Like Me!: A Book about a Girl with a Rare Disease

Just Like Me!: A Book about a Girl with a Rare Disease
Title Just Like Me!: A Book about a Girl with a Rare Disease PDF eBook
Author Anne Rugari
Publisher Braughler Books, LLC
Pages 22
Release 2018-10-30
Genre Young Adult Nonfiction
ISBN 9780982218716

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Raising a Rare Girl

Raising a Rare Girl
Title Raising a Rare Girl PDF eBook
Author Heather Lanier
Publisher Penguin
Pages 321
Release 2021-07-06
Genre Family & Relationships
ISBN 0525559655

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“A remarkable book . . . I found myself thinking that all expectant and new parents should read it.” —Michelle Slater A New York Times Book Review Editors' Choice In Raising a Rare Girl, Lanier explores how to defy the tyranny of normal and embrace parenthood as a spiritual practice that breaks us open in the best of ways. Like many women of her generation, when Heather Lanier was expecting her first child she did everything by the book in the hope that she could create a SuperBaby, a supremely healthy human destined for a high-achieving future. But her daughter Fiona challenged all of Lanier’s preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. The diagnosis obliterated Lanier’s perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability, God, and love. With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app, and a whole lot of pop and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.