This groundbreaking resource explores core issues in participatory health research (PHR) and traces its global emergence as a force for improving health and well-being, healthcare services, and quality of life. The PHR approach is defined as including community members, health practitioners, and decision-makers as co-researchers, using local knowledge to reduce disparities in care, advocate for responsive health policy, and accelerate positive change in society as a whole. The book’s first half surveys themes essential to the development of the field, including evaluating PHR projects, training professionals in conducting PHR, and the ambitious work of the International Collaboration for Participatory Health Research. International perspectives showcase the varied roles of PHR in addressing urgent local health problems in their specific public health and sociocultural contexts. Among the topics covered: Demonstrating impact in participatory health research Reviewing the effectiveness of participatory health research: challenges and possible solutions Kids in Action—participatory health research with children Participatory health research: an Indian perspective Participatory health research in Latin America: scientific production on chronic diseases Participatory health research in North America: from community engagement to evidence-informed practice Participatory Health Research benefits those teaching and learning about participatory health research at institutions of higher education and in community settings, addressing diverse fields including health promotion and disease prevention, medicine and public health, quality of life, social work, and community development.

Community-based participatory research (CBPR) emerged in response to the longstanding tradition of "top-down" research-studies in which social scientists observe social phenomena and community problems as outsiders, separate from the participants' daily lives. CBPR is more immersive, fostering partnerships between academic and community organizations that increase the value and consequence of the research for all partners. The current perspectives gleaned from this school of research have been wildly well-received, in no small part because they address the complexity of the human experience in their conclusions. HANDBOOK OF COMMUNITY-BASED PARTICIPATORY RESEARCH codifies the methods and theories of this research approach and articulates an expansive vision of health that includes gender equality, safe and adequate housing, and freedom from violence. Topic-based chapters apply the theory and methods of CBPR to real world problems affecting women, ethnic and racial minorities, and immigrant communities such as sexual violence, exposure to environmental toxins, and lack of access to preventive care as well as suggesting future directions for effective, culturally sensitive research. HANDBOOK OF COMMUNITY-BASED PARTICIPATORY RESEARCH is required reading for academics, policy makers, and students seeking meaningful social change through scholarship.

The definitive guide to CBPR concepts and practice, updated and expanded Community-Based Participatory Research for Health: Advancing Health and Social Equity provides a comprehensive reference for this rapidly growing field in participatory and community-engaged research. Hailed as effective by the Centers for Disease Control and Prevention, CBPR and CEnR represent the link between researchers and community and lead to improved public health outcomes. This book provides practitioner-focused guidance on CBPR and CEnR to help public health professionals, students, and practitioners from multiple other clinical, planning, education, social work, and social science fields to successfully work towards social and health equity. With a majority of new chapters, the book provides a thorough overview of CBPR history, theories of action and participatory research, emerging trends of knowledge democracy, and promising practices. Drawn from a ten-year research effort, this new material is organized around the CBPR Conceptual Model, illustrating the importance of social context, promising partnering practices, and the added value of community and other stakeholder engagement for intervention development and research design. Partnership evaluation, measures, and outcomes are highlighted, with a revised section on policy outcomes, including global health case studies. For the first time, this updated edition also includes access to the companion website, featuring lecture slides of conceptual and partnership evaluation-focused chapters, with resources from appendices to help bring CBPR concepts and practices directly into the classroom. Proven effective year after year, CBPR has become a critically important framework for public health, and this book provides clear reference for all aspects of the practice. Readers will: Examine the latest research on CPBR, and incorporate new insights into practice Understand the history and theoretical basis of CPBR, and why it has been so effective Reflect on critical issues of racism, power, and privilege; trust development; ethical practice within and beyond IRBs; and cultural humility Learn new partnership evaluation and collective reflection strategies, including measures and metrics, to enhance their own practice for improved health and social equity outcomes

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ìCommunity-Based Participatory Research (CBPR) has become the preferred model for conducting research in communities. Most scientists who conduct such research now recognize that working in partnership with the community is preferable, and more ethical, than conducting research on a communityÖ. As Surgeon General of the United States, I direct a number of programs aimed at encouraging Americans to avoid tobacco, engage in physical activity, consume more nutritious diets, and protect their health in other ways. We need more effective methods to persuade, motivate, and enable individuals and communities to adopt these healthier lifestyles, and it is through CBPR that we will be able to discover these methods.î From the Foreword by Regina M. Benjamin, MD, MBA, U.S. Surgeon General ìThe editors of this book bring together in one place both a description of epidemiological methods and a discussion of community-level issues. It is a volume that will prove useful to those who wish to conduct contemporary community-based research.î ñ Praise for the First Edition from the Foreword David Satcher, Former Surgeon General of the United States This second edition of a highly regarded textbook on the foundations of and strategies for achieving fertile community-based health care research has been completely revised and updated. It now includes new chapters on translating research into practice, evaluating research, and applying community-based participatory research (CBPR) principles to service, education, and evaluation. The book also updates a crucial chapter on the voices of community stakeholders and an important study of the ethical issues surrounding the Tuskegee Syphilis Study. Edited by renowned professors of community-based research, the text is distinguished by its how-to approach and focus on practical research methods. The text discusses the unique challenges of conducting CBPR and addresses ways to build and sustain community partnerships. It explores ethical issues regarding health care research, includes input from community stakeholders, and describes national and international support for CBPR. Research methods covered include qualitative studies, surveys, and intervention trials. Applications of CBPR illustrate how to translate research into practice and community-based participatory approaches to service, education, and evaluation. The second edition includes new chapters on: Building and sustaining researcher/community partnerships National and international investments in and support for CBPR Surveys and methods for conducting CBPR Translating research into practice Community-based participatory approaches to service, education, and evaluation

Platform trials, using adaptive methodologies, have played an important role in the research response to COVID-19, and offer prospect of being widely used in future pandemic preparedness and response. As these relatively new methodologies raise a number of ethical and governance challenges, in early 2022 the Health Ethics and Governance Unit of the World Health Organization commissioned five rapid reviews, with the aim of learning from, and building on, experiences during the pandemic. These reviews covered the role and policy impact of adaptive platform trials during COVID-19 https://www.who.int/teams/health-ethics-governance/emergencies-and-outbreaks/platform-trials. The target audiences: the research community, including researchers, research funders, ministries of health and science, research ethics committee and regulators.