Navigating the Landscape of FAIR Data Sharing and Reuse: Repositories, Standards, and Resources

Navigating the Landscape of FAIR Data Sharing and Reuse: Repositories, Standards, and Resources
Title Navigating the Landscape of FAIR Data Sharing and Reuse: Repositories, Standards, and Resources PDF eBook
Author Maaike M. H. Van Swieten
Publisher Frontiers Media SA
Pages 136
Release 2024-03-08
Genre Science
ISBN 2832545939

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The huge volume of neuroscience data and the wide variety of data formats generated across different neuroscience communities has posed a challenge to traditional methods of data management, data sharing and data mining. Mandates on data sharing and the demand for using open data has driven the development of advanced methodologies and tools to effectively explore, mine and integrate data. However, the growing number of resources make it harder for researchers to navigate this landscape. Awareness of these tools and resources is vital for effective data mining and unlocking new discoveries. The goal of this research collection is to provide an overview of available resources, centred around making data findable, accessible, interoperable and reusable (FAIR).

Principles and Practice of Clinical Trials

Principles and Practice of Clinical Trials
Title Principles and Practice of Clinical Trials PDF eBook
Author Steven Piantadosi
Publisher Springer Nature
Pages 2573
Release 2022-07-19
Genre Medical
ISBN 3319526367

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This is a comprehensive major reference work for our SpringerReference program covering clinical trials. Although the core of the Work will focus on the design, analysis, and interpretation of scientific data from clinical trials, a broad spectrum of clinical trial application areas will be covered in detail. This is an important time to develop such a Work, as drug safety and efficacy emphasizes the Clinical Trials process. Because of an immense and growing international disease burden, pharmaceutical and biotechnology companies continue to develop new drugs. Clinical trials have also become extremely globalized in the past 15 years, with over 225,000 international trials ongoing at this point in time. Principles in Practice of Clinical Trials is truly an interdisciplinary that will be divided into the following areas: 1) Clinical Trials Basic Perspectives 2) Regulation and Oversight 3) Basic Trial Designs 4) Advanced Trial Designs 5) Analysis 6) Trial Publication 7) Topics Related Specific Populations and Legal Aspects of Clinical Trials The Work is designed to be comprised of 175 chapters and approximately 2500 pages. The Work will be oriented like many of our SpringerReference Handbooks, presenting detailed and comprehensive expository chapters on broad subjects. The Editors are major figures in the field of clinical trials, and both have written textbooks on the topic. There will also be a slate of 7-8 renowned associate editors that will edit individual sections of the Reference.

Managing and Sharing Research Data

Managing and Sharing Research Data
Title Managing and Sharing Research Data PDF eBook
Author Louise Corti
Publisher SAGE
Pages 258
Release 2014-02-04
Genre Social Science
ISBN 144629773X

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Research funders in the UK, USA and across Europe are implementing data management and sharing policies to maximize openness of data, transparency and accountability of the research they support. Written by experts from the UK Data Archive with over 20 years experience, this book gives post-graduate students, researchers and research support staff the data management skills required in today’s changing research environment. The book features guidance on: how to plan your research using a data management checklist how to format and organize data how to store and transfer data research ethics and privacy in data sharing and intellectual property rights data strategies for collaborative research how to publish and cite data how to make use of other people’s research data, illustrated with six real-life case studies of data use.

Data Sharing and Secondary Use of Scientific Data

Data Sharing and Secondary Use of Scientific Data
Title Data Sharing and Secondary Use of Scientific Data PDF eBook
Author Ann S. Zimmerman
Publisher
Pages 572
Release 2003
Genre Ecology
ISBN

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Curating Research Data

Curating Research Data
Title Curating Research Data PDF eBook
Author Lisa R. Johnston
Publisher
Pages 285
Release 2016-11-01
Genre Data curation in libraries
ISBN 9780838988589

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Data are becoming the proverbial coin of the digital realm: a research commodity that might purchase reputation credit in a disciplinary culture of data sharing, or buy transparency when faced with funding agency mandates or publisher scrutiny. Unlike most monetary systems, however, digital data can flow in all too great an abundance. Not only does this currency actually grow on trees, but it comes from animals, books, thoughts, and each of us! And that is what makes data curation so essential. The abundance of digital research data challenges library and information science professionals to harness this flow of information streaming from research discovery and scholarly pursuit and preserve the unique evidence for future use. Volume One of Curating Research Data explores the variety of reasons, motivations, and drivers for why data curation services are needed in the context of academic and disciplinary data repository efforts. Twelve chapters, divided into three parts, take an in-depth look at the complex practice of data curation as it emerges around us. Part I sets the stage for data curation by describing current policies, data sharing cultures, and collaborative efforts currently underway that impact potential services. Part II brings several key issues, such as cost recovery and marketing strategy, into focus for practitioners when considering how to put data curation services in action. Finally, Part III describes the full lifecycle of data by examining the ethical and practical reuse issues that data curation practitioners must consider as we strive to prepare data for the future. Digital data is ubiquitous and rapidly reshaping how scholarship progresses now and into the future. The information expertise of librarians can help ensure the resiliency of digital data, and the information it represents, by addressing how the meaning, integrity, and provenance of digital data generated by researchers today will be captured and conveyed to future researchers.

Preservation and the New Data Landscape

Preservation and the New Data Landscape
Title Preservation and the New Data Landscape PDF eBook
Author Erica Avrami
Publisher Issues in Preservation Policy
Pages 220
Release 2019
Genre Architecture
ISBN 9781941332481

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This book explores how enhancing the collection, accuracy, and management of data can aid in identifying vulnerable neighborhoods, understanding the role of older buildings, and planning sustainable growth. For preservation to play a dynamic and inclusive role, policy must evolve beyond designation and regulation and use evidence-based research.

Fundamentals of Clinical Data Science

Fundamentals of Clinical Data Science
Title Fundamentals of Clinical Data Science PDF eBook
Author Pieter Kubben
Publisher Springer
Pages 219
Release 2018-12-21
Genre Medical
ISBN 3319997130

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This open access book comprehensively covers the fundamentals of clinical data science, focusing on data collection, modelling and clinical applications. Topics covered in the first section on data collection include: data sources, data at scale (big data), data stewardship (FAIR data) and related privacy concerns. Aspects of predictive modelling using techniques such as classification, regression or clustering, and prediction model validation will be covered in the second section. The third section covers aspects of (mobile) clinical decision support systems, operational excellence and value-based healthcare. Fundamentals of Clinical Data Science is an essential resource for healthcare professionals and IT consultants intending to develop and refine their skills in personalized medicine, using solutions based on large datasets from electronic health records or telemonitoring programmes. The book’s promise is “no math, no code”and will explain the topics in a style that is optimized for a healthcare audience.