"Since you have opened this book, you or a close friend or family member have likely been impacted by the upsetting and frightening diagnosis of dementia. You may have been told about this diagnosis in a number of different ways. Either the term dementia was used, or other words associated with or more specific than dementia, such as Alzheimer's disease, vascular dementia, Lewy Body disease, frontotemporal dementia, or Pick's disease, were used. You may even have been misinformed at first and told that you were simply facing the normal changes of aging, such as forgetfulness or mild depression. Sometimes these terms are relatable based on others we know who have been affected by them. But they can be shocking to hear and hard to understand when talking about yourself or a loved one. Even more difficult is that none of the most common forms of dementia currently have treatments that can cure or slow the disease"--

In the U.S. today, over 5.8 million Americans are living with Alzheimer's Disease or related dementia. Each of these individuals has a story. And each one has caregivers, with stories of their own.You have questions - so many questions about what is happening now, and what is to come. How do I cope with this new manifestation of the disease? How do I prepare for an uncertain future?This is especially true when just navigating your way through each day can be overwhelming.Contained within these pages are answers to some of your questions as well as strategies for your future. In navigating this journey, it is important to remember two essential truths. The first is that the body may fail, and the mind may wander, but the spirit - the person inside - remains intact. The caregiver's role is to maximize the remaining strengths of the person they care for.The second is that you are not alone. Caregiving is often an isolating experience.Stories from the lives of others let us know that our experiences are not unique. Be assured that many have gone before, and others are walking the same road today.This is "I Know You by Heart: Navigating the Dementia Journey"

‘Many assume that living with dementia is one long term steady decline. Jennifer’s insightful book debunks that myth.’ – Jeremy Hughes, Chief Executive, Alzheimer's Society Jennifer Bute was a highly qualified senior doctor in a large clinical practice, whose patients included those with dementia. Then she began to notice symptoms in herself. She was finally given a diagnosis of Young Onset Dementia in 2009. After resigning as a GP, she resolved to explore what could be done to slow the progress of dementia. The aim of this practical book is to help people who are living with dementia and to give hope to those who are with them on the dementia journey. Jennifer believes that her dementia is an opportunity as well as a challenge. Her important insights are that the person ‘inside’ remains and can be reached, even when masked by the condition, and that spirituality rises as cognition becomes limited. ‘The observant physician shines through in Dr Bute's book, while her practical advice reveals the resourcefulness of an inventor. Alzheimer’s disease has surely met one of its toughest ever adversaries!’ – Peter Garrard, Professor of Neurology, University of London

Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

This book helps to relieve the fear, anxiety and confusion family member experience when a loved one is diagnosed with dementia. This 3-hour read provides detailed help with skills, tips and guidance based on 14 years of dementia experience.

[Content] All about the authors; Introduction; Talking with your relative; Becoming a detective: problem solving; The 4 A's: anxiety, anxiety, anger, and aggression; Why won't she take a bath; Taking the stress out of dressing; Eating; Mouth care; When you gotta go: helping a relative in the bathroom; Over and over again: repetitive behaviors; There's no place like home: when your relative wants to go home; Walking, pacing, wandering, or exercising; When you don't see things the same way: paranoia, delusions and hallucinations; And hours to go before we sleep: sleep and sundowning; Physical intimacy and sexual behavior; Glossary; Resources.

Navigating Life with Multiple Sclerosis will serve as a practical guide for meeting the challenges of this life-long disease. MS may cause a myriad of symptoms and varies greatly from person to person. The authors demystify MS and offer practical solutions and guidance based upon their extensive combined clinical and research experience. The book tackles many of the common symptoms experienced by the person with MS and looks into the future to explore where research is headed. If you are newly diagnosed or have been living with MS for years, this book is an invaluable guide.