This is a book written to celebrate the humanity of people, and to share experiences of what brilliant care and support can look like for families with learning disabled or autistic children and adults. Sara Ryan steers clear of jargon and 'doublespeak' to conjure authentic experiences of families. Speaking with families and professionals, she conveys the love, laughter and joy which binds families and the harsh realities many face; of separation from loved ones, substandard care and frustration and helplessness in the face of inflexible services. From their experiences, Sara looks to capture those pockets of brilliance that families have encountered, and which outstanding practitioners have pioneered, for us all to learn from. We know so much about what support and services should look like in order to enable flourishing lives - this book aims to help families and professionals to achieve it, together.

This book offers a critical discussion on the necessity for 'difficult conversations' to take place in education, drawing on studies from across the UK. The editors and contributors address three key questions: - How can 'difficult conversations' be theorised? - What transformations in thinking and practice can occur through 'difficult conversations'? - What value do 'difficult conversations' have in enabling understanding and compassion between the diverse communities of today? The chapters cover a range of topics including supporting children with SEND, parent and carer engagement, childhood trauma, race, disability, the climate emergency, and the researcher's positionality. The contributors draw on the theoretical work of bell hooks, Linda Alcoff, Paulo Freire, Victor Turner, Homi Bhabha, Nel Nodings, Melanie Nind, Emile Bojesen, Gayatri Chakravorty Spivak, Mathew Lipman, and other contemporary theories. They argue against the prevailing deficit-based perspectives about marginalized communities and invite deep thinking about the nature of oppression experienced in many spheres of education and therefore in our society. Ultimately, the book advocates for the empowerment and agency of anyone facing social inequalities through engagement in 'difficult conversations' as a means of transformation and social change.

Communication and interpersonal skills are an essential part of practice. Taking a skills-based approach, this book looks at research, theories, approaches and processes, demonstrating how they relate directly to practice. It will help you to understand the benefits that good communication skills can bring to your work with children and families, adults, groups, and those with communication difficulties.

This handbook provides an authoritative and up-to-date overview of Critical Autism Studies and explores the different kinds of knowledges and their articulations, similarities, and differences across cultural contexts and key tensions within this subdiscipline. Critical Autism Studies is a developing area occupying an exciting space of development within learning and teaching in higher education. It has a strong trajectory within the autistic academic and advocate community in resistance and response to the persistence of autism retaining an identity as a genetic disorder of the brain. Divided into four parts • Conceptualising autism • Autistic identity • Community and culture • Practice and comprising 24 newly commissioned chapters written by academics and activists, it explores areas of education, Critical Race Theory, domestic violence and abuse, sexuality, biopolitics, health, and social care practices. It will be of interest to all scholars and students of disability studies, sociology, anthropology, cultural studies, education, health, social care, and political science.

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'? Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and paediatric palliative care. From recognising tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care. Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

What lies behind England’s crisis in adult social care, why has real change been so hard and what can be done? Ensuring effective, sustainable and affordable care and support for people of all ages is an urgent public policy challenge. This vital book outlines a different vision of social care as an essential part of the country’s economic and social infrastructure that enables people to live good lives. Drawing on the history of social care, international comparisons and lived experience, it sets out a different road to reform that will secure political traction and public support for change.