This ground-breaking study examines visual and literary responses to, and representations of, illness, dying and death from the perspective of the chronically ill, their families and carers, medics, artists, photographers, authors, and academics. It encourages a re-examination of cultural taboos and visual and literary practices that engage with illness and death. Focusing upon a wide range of creative and critical engagements, this book makes a significant contribution to the medical humanities via its exploration of medical practice, literature and film, digital media studies, graphic design, and both contemporary and historical attitudes towards illness, death (including infant mortality), mourning and bereavement. For some, the experience of illness provokes feelings of exile, crisis or social critique, whilst for others it instigates utopian discourses predicated upon personal reflection, communication or connectivity, wherein the “self” is redefined beyond the parameters and constraints of the “body”.

Our personalities and our identities are intimately bound up with the stories that we tell to organize and to make sense of our lives. To understand the human meaning of illness, we therefore must turn to the stories we tell about illness, suffering, and medical care. Stories of Sickness explores the many dimensions of what illness means to the sufferers and to those around them, drawing on depictions of illness in great works of literature and in nonfiction accounts. The exploration is primarily philosophical but incorporates approaches from literature and from the medical social sciences. When it was first published in 1987, Stories of Sickness helped to inaugurate a renewed interest in the importance of narrative studies in health care. For the Second Edition the text has been thoroughly revised and significantly expanded. Four almost entirely new chapters have been added on the nature, complexities, and rigor of narrative ethics and how it is carried out. There is also an additional chapter on maladaptive ways of being sick that deals in greater depth with disability issues. Health care professionals, students of medicine and bioethics, and ordinary people coping with illness, no less than scholars in the health care humanities and social sciences, will find much value in this volume. Unique Features: *Philosophically sophisticated yet clearly written and easily accessible *Interdisciplinary approach--combines philosophy, literature, health care, social sciences *Contains many fascinating stories and vignettes of illness drawn from both fiction and nonfiction *A new and comprehensive overview of the "hot topic" of narrative ethics in medicine and health care

This book seeks to explain how consumption - a horrible disease - came to be the glamorous and artistic Romantic malady. It tries to explain the disparity between literary myth and bodily reality, by examining literature and medicine from the Renaissance to the late Victorian period, covering a wide range of authors and characters.

Virginia Woolf’s daring essay on how illness transforms our perception, plus an essay by Woolf’s mother from the caregiver’s perspective: “Revelatory.” —Booklist This new publication of “On Being Ill” with “Notes from Sick Rooms” presents Virginia Woolf and her mother, Julia Stephen, in textual conversation for the first time in literary history. In the poignant and humorous essay “On Being Ill,” Woolf observes that though illness is part of every human being’s experience, it is not celebrated as a subject of great literature in the way that love and war are embraced by writers and readers. We must, Woolf says, invent a new language to describe pain. Illness, she observes, enhances our perceptions and reduces self-consciousness; it is “the great confessional.” Woolf discusses the taboos associated with illness, and she explores how it changes our relationship to the world around us. “Notes from Sick Rooms,” meanwhile, addresses illness from the caregiver’s perspective. With clarity, humor, and pathos, Julia Stephen offers concrete information that remains useful to nurses and caregivers today. This edition also includes an introduction to “Notes from Sick Rooms” by Mark Hussey, founding editor of Woolf Studies Annual, and a poignant afterword by Rita Charon, MD, founder of the field of Narrative Medicine. In addition, Hermione Lee’s brilliant introduction to “On Being Ill” offers a superb overview of Woolf’s life and writing. “Woolf’s inquiry into illness and its impact on the mind is paired with her mother’s observations about caring for the body. Julia Stephen . . . had no professional training but took to heart Florence Nightingale’s precept that every woman is a nurse and emulated Nightingale’s best-selling Notes on Nursing with her own “Notes from Sick Rooms.” In this long-overlooked, precise, and piquant little manual, Stephen is compassionate and ironic, observing that everyone deserves to be tenderly nursed while addressing the small evil of crumbs in bed. This unprecedented literary reunion of mother and daughter is stunning on many fronts, but physician and literary scholar Rita Charon focuses on the essentials in her astute afterword, writing that Woolf’s perspective as a patient and Stephen’s as a nurse together illuminate the goal of care—to listen, to recognize, to imagine, to honor.” —Booklist “Woolf and Stephen will certainly change the way readers think of illness.” —Publishers Weekly

"In this penetrating analysis of the social attitudes toward various major illnesses - chiefly tuberculosis, the scourge of the 19th century, and cancer, the terror of our own - Susan Sontag demonstrates that "illness is not a metaphor" and shows why "the healthiest way of being ill is one purified of metaphoric thinking." Once tuberculosis was identified as a bacterial infection, it ceased to be a symbol of a romantic fading away or of a sensitive or artistic temperament, and it could be treated and cured. Similarly, we must today cease to think of cancer as a mark of doom, a punishment or a sign of a repressed personality, and recognize it for what it is: one disease among many and often receptive to treatment." -- from back cover.

Mental illness has been a favourite topic for authors throughout the history of literature, while psychologists and psychiatrists such as Sigmund Freud and Karl Jaspers have in turn been interested in and influenced by literature. Pioneers within philosophy, psychiatry and literature share the endeavour to explore and explain the human mind and behaviour, including what a society deems as being outside perceived normality. Using a theoretical approach that is eclectic and transdisciplinary, this volume engages with literature’s multifarious ways of probing minds and bodies in a state of mental ill health. The cases and the theory are in dialogue with a clinical approach, addressing issues and diagnoses such as trauma, psychosis, bipolar disorder, eating disorders, self-harm, hoarding disorder, PTSD and Digital Sexual Assault. The chapters in Part I address literary representations of madness with a historical awareness, outlining the socio-political potentials of madness literature. Part II investigates how representations of mental illness in literature can offer unique insights into the subjective experience of alternative states of mind. Part III reflects on how literary cases can be applied to help inform mental health education, how they can be used therapeutically and how they are giving credence to new diagnoses. Throughout the book, the contributors consider how the language and discourses of literature—both stylistically and theoretically—can teach us something new about what it means to be mentally unwell.