Exiting Nirvana details Clara Claiborne Park's continuing efforts to have her daughter Jessy 'exit Nirvana,' develop as an artist, and connect with our world.

A Father, His Son, and an Unrelenting Quest for a Cure At the age of twenty-seven, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. Finally, even the sound of a footstep in his room became unbearable. The Puzzle Solver follows several years in which he desperately sought answers from specialist after specialist, where at one point his 6'3" frame dropped to 115 lbs. For years, he underwent endless medical tests, but doctors told him there was nothing wrong. Then, finally, a diagnosis: Chronic Fatigue Syndrome, also known as myalgic encephalomyelitis. In the 80s, when an outbreak of people immobilized by an indescribable fatigue were reported near Lake Tahoe, Nevada, doctors were at a loss to explain the symptoms. The condition would alternatively be nicknamed Raggedy Ann Syndrome or the Yuppie Disease, and there was no cure or answers about treatment. They were to remain sick. But there was one answer: Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition. In The Puzzle Solver, journalist Tracie White, who first wrote a viral and award-winning piece on Davis and his family in Stanford Medicine, tells his story. In gripping prose, she masterfully takes readers along on this journey with Davis to solve one of the greatest mysteries in medicine. In a piercing investigative narrative, closed doors are opened, and masked truths are exposed as Davis uncovers new proof confirming that Chronic Fatigue Syndrome is a biological disease. At the heart of this book is a moving story that goes far beyond medicine, this is a story about how the power of love -- and science -- can shine light in even the darkest, most hidden, corners of the world.

Originally published: London: HarperCollins, 2011.

“A tour de force. It is a thoughtful, subtle, beautifully written discussion of what it takes to live a meaningful life.” —Barry Schwartz, author of The Paradox of Choice Throughout history most of us have looked to faith, relationships, or deeds to give our lives purpose. But in A Significant Life, philosopher Todd May offers an exhilarating new way of thinking about meaning, one deeply attuned to life as it actually is: a work in progress, a journey—and often a narrative. Offering moving accounts of his own life alongside rich engagements with philosophers from Aristotle to Heidegger, he shows us where to find the significance of our lives: in the way we live them. May starts by looking at the fundamental fact that life unfolds over time, and as it does so, it begins to develop certain qualities, certain themes. Our lives can be marked by intensity, curiosity, perseverance, or many other qualities that become guiding narrative values. These values lend meanings to our lives that are distinct from—but also interact with—the universal values we are taught to cultivate, such as goodness or happiness. Offering a fascinating examination of a broad range of figures—from music icon Jimi Hendrix to civil rights leader Fannie Lou Hamer, from cyclist Lance Armstrong to The Portrait of a Lady’s Ralph Touchett to Claus von Stauffenberg, a German officer who tried to assassinate Hitler—May shows that narrative values offer a rich variety of criteria by which to assess a life, specific to each of us and yet widely available. They offer us a way of reading ourselves, who we are, and who we might like to be.

This volume, the first scholarly book on autism and the humanities, brings scholars from several different disciplines together with adults on the autism spectrum to investigate the diverse ways that autism has been represented in novels, poems, autobiographies, films and clinical discourses, and to explore the connections and demarcations between autistic and "normal" creative expression.

The story of Jamie Bérubé’s journey to adulthood and a meditation on disability in American life Published in 1996, Life as We Know It introduced Jamie Bérubé to the world as a sweet, bright, gregarious little boy who loves the Beatles, pizza, and making lists. When he is asked in his preschool class what he would like to be when he grows up, he responds with one word: big. At four, he is like many kids his age, but his Down syndrome prevents most people from seeing him as anything but disabled. Twenty years later, Jamie is no longer little, though he still jams to the Beatles, eats pizza, and makes endless lists of everything—from the sixty-seven counties of Pennsylvania (in alphabetical order, from memory) to the various opponents of the wrestler known as the Undertaker. In Life as Jamie Knows It, Michael Bérubé chronicles his son’s journey to adulthood and his growing curiosity and engagement with the world. Writing as both a disability studies scholar and a father, he follows Jamie through his social and academic experiences in school, his evolving relationships with his parents and brother, Nick, his encounters with illness, and the complexities of entering the workforce with a disability. As Jamie matures, his parents acknowledge his entitlement to a personal sense of independence, whether that means riding the bus home from work on his own, taking himself to a Yankees game, or deciding which parts of his story are solely his to share. With a combination of stirring memoir and sharp intellectual inquiry, Bérubé tangles with bioethicists, politicians, philosophers, and anyone else who sees disability as an impediment to a life worth living. Far more than the story of an exceptional child growing up to be “big,” Life as Jamie Knows It challenges us to rethink how we approach disability and is a passionate call for moving toward a more just, more inclusive society.