Everything You Need to Know About Caregiving for Parkinson’s Disease

Everything You Need to Know About Caregiving for Parkinson’s Disease
Title Everything You Need to Know About Caregiving for Parkinson’s Disease PDF eBook
Author Lianna Marie
Publisher Purdue University Press
Pages 151
Release 2020-10-15
Genre Medical
ISBN 1557539960

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Caregiving for those who suffer from Parkinson’s disease comes with many challenges, from how to deal with guilt and loneliness to avoiding burnout and figuring out what to expect from an unpredictable disease. When giving care, too often caregivers neglect their own well-being. Everything You Need to Know About Caregiving for Parkinson’s Disease is not just about caring for your loved one, but also about taking care of yourself. Lianna Marie served as her mother's caregiver for more than twenty years after she was diagnosed with Parkinson’s disease. Drawing on firsthand experience, her training as a nurse, and the many stories of others she has helped and counseled over the years, Marie shares her wisdom and advice—practical and emotional. Written accessibly and without jargon, Everything You Need to Know provides an essential resource full of useful information for all caregivers of those with Parkinson’s disease.

The Complete Guide for People With Parkinson’s Disease and Their Loved Ones

The Complete Guide for People With Parkinson’s Disease and Their Loved Ones
Title The Complete Guide for People With Parkinson’s Disease and Their Loved Ones PDF eBook
Author Lianna Marie
Publisher Purdue University Press
Pages 183
Release 2020-10-15
Genre Health & Fitness
ISBN 1557536686

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A diagnosis of Parkinson’s disease is as disorienting as it is devastating. The Complete Guide for People With Parkinson’s Disease and Their Loved Ones helps make sense of what comes next and what can be done, not just for those suffering from the disease but for their family and friends as well. A trained nurse and primary caregiver for her mother, who was diagnosed with Parkinson’s disease in 1991, Lianna Marie draws upon over twenty years of education, research, and direct experience. Written in straightforward and easily accessible language, this essential guide aims to help patients better understand their role in their treatment so that they may continue to lead happy and hopeful lives. Topics covered include nutrition and exercise, alternative and complementary therapies, medication and treatment, and what caregivers can do to help. Written by an international expert on Parkinson’s who has confronted the disease firsthand, The Complete Guide serves as the go-to book for comprehensive, easy-to-understand information for all Parkinson’s patients and their loved ones.

Everything You Need to Know about Parkinson's Disease

Everything You Need to Know about Parkinson's Disease
Title Everything You Need to Know about Parkinson's Disease PDF eBook
Author Lianna Marie
Publisher Createspace Independent Publishing Platform
Pages 0
Release 2015-10-22
Genre Parkinson's disease
ISBN 9781515258315

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In this self-published work, the author answers the most important questions about Parkinson's disease.

Comprehensive Nursing Care for Parkinson's Disease

Comprehensive Nursing Care for Parkinson's Disease
Title Comprehensive Nursing Care for Parkinson's Disease PDF eBook
Author Lisette K. Bunting-Perry, MScN, RN
Publisher Springer Publishing Company
Pages 336
Release 2007-04-14
Genre Medical
ISBN 0826103456

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"This is a wonderful resource for nurses and other healthcare professionals providing care for patients with Parkinson's Disease (PD)Ö.This unique book provides readers with access to multiple experts in the field and a wide variety of pertinent topics in the care of patients with PD. This is an excellent addition to the field and will be extremely useful for interdisciplinary teams caring for these patients." Score: 100, 5 stars --Doody's The incidence of Parkinson's is growing as the number of older adults making up the general population increases. The demand for nurses who specialize in the care of patients with movement disorders is also increasing and it is crucial that they have a comprehensive manual for patient care. Lisette Bunting-Perry and Gwyn Vernon have years of experience working with Parkinson's patients and have put together a team of internationally renowned clinicians who provide a truly comprehensive review of the information you need for the care of patients with this complex clinical profile. Comprehensive Nursing Care for Parkinson's Disease covers what is presently known about the disease and current evidence-based standards of care, including management through deep brain stimulation, palliative care for frail older adults with Parkinson's, medication management, nonmotor complications and psychosocial issues, and complementary and alternative approaches. This is an indispensable bedside companion in caring for those with Parkinson's as well as a much needed catalyst for the evaluation of future patient needs and the further development of comprehensive models of care.

Navigating Life with Parkinson Disease

Navigating Life with Parkinson Disease
Title Navigating Life with Parkinson Disease PDF eBook
Author Sotirios Parashos
Publisher Oxford University Press
Pages 320
Release 2012-11-20
Genre Health & Fitness
ISBN 019931120X

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Here is a marvelous guide for anyone affected by Parkinson's disease--patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson's disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are highlighted for easy visibility. The authors have also included true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.

Advice from a Parkinson's Wife

Advice from a Parkinson's Wife
Title Advice from a Parkinson's Wife PDF eBook
Author Barbara Sheklin Davis
Publisher Parker Hayden Media
Pages 160
Release 2021-02-19
Genre
ISBN 9781950349357

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More than ten million people worldwide live with Parkinson's disease, and their spouses are most likely to be their primary caregivers. The transition from spouse to caregiver is not an easy one, often causing frustration, resentment, sadness, fear, and concern about the future. A lot has been written about caring for the Parkinson's patient, but their caregivers need a book to help them cope with the enormous life changes that Parkinson's brings to a relationship. This book does that. Barbara Davis's husband had Parkinson's for over twenty years. She wrote this book after more than two decades of personal experience because she wanted to chronicle the serious matters that most Parkinson's partners don't like to talk about publicly, and the feelings and frustrations they are embarrassed to share. By discussing these challenges openly and honestly, this unique book seeks to help others in ways that are not otherwise easily accessible, and to let them know that they are not alone in dealing with the negative life impacts of Parkinson's Disease. Advice from a Parkinson's Wife is realistic and enlightening, providing stories and advice from someone who's been there, along with practical suggestions for how to cope with the changes caregivers experience. Among the topics covered in the book are: -How your marriage changes and what caregiving does to you-How to handle doctor visits-What to do about falls, clinging, masks, and variability-Handling guilt and other emotions -Suggestions for practical things you can do to make things easierBeing a caregiver is tough, but with the wisdom, compassion, and advice in this book, the hope is that you can find moments when you can experience something approaching happiness, pleasure, and maybe even joy.

Families Caring for an Aging America

Families Caring for an Aging America
Title Families Caring for an Aging America PDF eBook
Author National Academies of Sciences, Engineering, and Medicine
Publisher National Academies Press
Pages 367
Release 2016-11-08
Genre Medical
ISBN 0309448093

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Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.