Children, Families, and Health Care Decision Making
Title | Children, Families, and Health Care Decision Making PDF eBook |
Author | Lainie Friedman Ross |
Publisher | Oxford University Press |
Pages | 220 |
Release | 2002 |
Genre | Business & Economics |
ISBN | 9780199251544 |
Ross here presents an original and controversial look at the moral principles that guide parents in making health care decisions for their children, and the role of children in the decision-making process. She opposes the current movement to increase child autonomy, in favor of respect for family autonomy and proposes significant changes in what informed consent allows and requires for pediatric health care decisions. The first systematic medical ethics book that focuses specifically on children's health care, Ross's work has important things to say to health care providers who work with children as well as to ethicists and public policy analysts.
America's Children
Title | America's Children PDF eBook |
Author | Institute of Medicine and National Research Council |
Publisher | National Academies Press |
Pages | 216 |
Release | 1998-10-27 |
Genre | Medical |
ISBN | 0309173930 |
America's Children is a comprehensive, easy-to-read analysis of the relationship between health insurance and access to care. The book addresses three broad questions: How is children's health care currently financed? Does insurance equal access to care? How should the nation address the health needs of this vulnerable population? America's Children explores the changing role of Medicaid under managed care; state-initiated and private sector children's insurance programs; specific effects of insurance status on the care children receive; and the impact of chronic medical conditions and special health care needs. It also examines the status of "safety net" health providers, including community health centers, children's hospitals, school-based health centers, and others and reviews the changing patterns of coverage and tax policy options to increase coverage of private-sector, employer-based health insurance. In response to growing public concerns about uninsured children, last year Congress voted to provide $24 billion over five years for new state insurance initiatives. This volume will serve as a primer for concerned federal policymakers and regulators, state agency officials, health plan decisionmakers, health care providers, children's health advocates, and researchers.
Health Care Choices
Title | Health Care Choices PDF eBook |
Author | Priscilla Alderson |
Publisher | Institute for Public Policy Research |
Pages | 114 |
Release | 1996 |
Genre | History |
ISBN | 9781860300462 |
"Save My Kid"
Title | "Save My Kid" PDF eBook |
Author | Amanda M. Gengler |
Publisher | NYU Press |
Pages | 255 |
Release | 2020-01-21 |
Genre | Social Science |
ISBN | 1479864625 |
A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In “Save My Kid,” Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children’s critical illnesses. She also uncovers the role that emotional goals—deeply rooted in the culture of illness and medicine—play in medical decision-making, healthcare interactions, and the end of children’s lives. A deeply compassionate read, “Save My Kid” is an inside look at inequality in healthcare among those with the most at stake.
Principles of Rehabilitation Medicine
Title | Principles of Rehabilitation Medicine PDF eBook |
Author | Raj Mitra |
Publisher | McGraw Hill Professional |
Pages | 512 |
Release | 2018-10-12 |
Genre | Medical |
ISBN | 0071793348 |
A high-yield board review and quick reference for Rehabilitation Medicine Rehabilitation Medicine Rapid Review is written primarily for Physical Medicine and Rehabilitation residents preparing for their board exams, and is also an excellent reference for practicing physicians who need a primer on this rapidly growing specialty. With content organized around the American board of Physical Medicine and Rehabilitation core curriculum, this powerful review is enhanced by more than 500 review questions and answers, and concise, bulleted, high-yield text. Readers will find quick answers to common and infrequent issues encountered in rehabilitation medicine
Children in Medical Research
Title | Children in Medical Research PDF eBook |
Author | Lainie Friedman Ross |
Publisher | OUP Oxford |
Pages | 300 |
Release | 2006-02-09 |
Genre | Philosophy |
ISBN | 0191534218 |
Lainie Ross presents a rigorous critical investigation of the development of policy governing the involvement of children in medical research. She examines the shift in focus from protection of medical research subjects, enshrined in post-World War II legislation, to the current era in which access is assuming greater precedence. Infamous studies such as Willowbrook (where mentally retarded children were infected with hepatitis) are evidence that before the policy shift protection was not always adequate, even for the most vulnerable groups. Additional safeguards for children were first implemented in many countries in the 1970s and 1980s; more recent policies and guidelines are trying to promote greater participation. Ross considers whether the safeguards work, whether they are fair, and how they apply in actual research practice. She goes on to offer specific recommendations to modify current policies and guidelines. Ross examines the regulatory structures (e.g. federal regulations and institutional review boards), the ad hoc policies (e.g. payment in pediatric research and the role of schools as research venues), the actual practices of researchers (e.g. the race/ethnicity of enrolled research subjects or the decision to enroll newborns) as well as the decision-making process (both parental permission and the child's assent), in order to provide a broad critique. Some of her recommendations will break down current barriers to the enrolment of children (e.g. permitting the payment of child research subjects; allowing healthy children to be exposed to research that entails more than minimal risk without requiring recourse to 407 panels); whereas other recommendations may create new restrictions (e.g., the need for greater protection for research performed in schools; restrictions on what research should be done in the newborn nursery). The goal is to ensure that medical research is done in a way that promotes the health of current and future children without threatening, to use the words of Hans Jonas, 'the erosion of those moral values whose loss . . . would make its most dazzling triumphs not worth having'.
When Others Must Choose
Title | When Others Must Choose PDF eBook |
Author | New York State Task Force on Life and the Law |
Publisher | |
Pages | 308 |
Release | 1992 |
Genre | Capacity and disability |
ISBN |